Long COVID severe at times, now much better with nervous-system work and pain reprocessing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4.5 years
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I've had long covid since Thanksgiving 2020
In context ↗ - At worst: Severe
My severity changes from mild to severe depending on a ton of factors
In context ↗ - Now: Much better
I have recovered at least 60-70%
In context ↗ - Began after: COVID
one confirmed infection at the end of 2020
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
Long COVID began after a confirmed infection at the end of 2020; their severity has fluctuated between mild and severe since. They credit nervous-system work and pain reprocessing therapy with gradual improvement and say they have recovered 60-70%, working from home with accommodations. Recovery has not been linear and symptoms wax and wane; they still describe mild to moderate CFS and take LDN, Adderall and cannabis edibles for sleep.
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What they tried
What they credit
Also tried
Their words about each treatment
- mind-body medicine and somatic techniques · Helped
one thing I can say that has helped my recovery the most has been mind-body medicine and somatic techniques to calm my nervous system
In context ↗ - generic Adderall xr · Helped
Currently on 10 mg generic Adderall xr and i find it definitely helps with motivation and concentration but can increase my insomnia sometimes and can worsen PEM if I overdo it
In context ↗ - COVID vaccinations · No change
I've had several vaccinations since getting long covid in 2020 and as far as I'm aware they don't really impact my baseline too much
In context ↗ - edibles · Helped
edibles are the one thing that consistently helps me sleep
In context ↗ - supplements · Not said
I've tried so many different supplements, sleep hygiene, etc
In context ↗ - pacing plan · Helped
chatgpt has actually been very helpful for me in coming up with a plan for my healing and pacing
In context ↗ - LDN · Helped
I've been at 4.5 mg for a while and have similarly plateaued so Im interested in trying a higher dose
In context ↗
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 3.5 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2020 | long COVID after one confirmed infectionI've had LC for over 4 years from one confirmed infection at the end of 2020.In context ↗ | Not stated | |
| — | severity fluctuating up to severe, with depressive and suicidal thoughtsMy severity changes from mild to severe depending on a ton of factors that I'm still figuring outIn context ↗ | Severe | |
| 2024-05-23 | recovered 60-70% with nervous system work, still taking precautionsI've had long covid since Thanksgiving 2020 and I can honestly tell you I have recovered at least 60-70%In context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2025-02-19 | symptoms improved over time but not linear, still wax and wanemy symptoms have improved over time with nervous system work and pain reprocessing therapy but it hasn't been a linear recoveryIn context ↗ | Mild |
Adverse events
- Amphetamine salts (Adderall)“can increase my insomnia sometimes” In context ↗ Insomnia from treatment
- Amphetamine salts (Adderall)“can worsen PEM if I overdo it” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Pfizer too in the past with some temporary heart rate increases” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
can worsen PEM if I overdo it
In context ↗ - Sleep problems
can increase my insomnia sometimes
In context ↗ - Anxiety & low mood
I've had depressive/suicidal thoughts as well for the past few years
In context ↗ - Heart symptoms & palpitations
some temporary heart rate increases
In context ↗
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