ME/CFS
Mild → no benefit
ME/CFS PEM crashes still mean 3-5 days in a dark room, sometimes a month unable to work
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
Whenever I get PEM it usually takes me 3-5 days of laying on a dark room to be able to return to work.
In context ↗ - At worst: Mild
Safety professional, in person, but I have missed about 70 days this year so far.
In context ↗ - Now: No benefit
I have missed about 70 days this year so far.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person who gets PEM worked in person as a safety professional, missing about 70 days of work this year so far. PEM crashes usually meant 3-5 days lying in a dark room before they could return to work, and occasionally stretched to a month unable to work in person. They did not mention treatments, an onset trigger or improvement.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2026-09-10 | PEM crash: days in a dark room, sometimes a month unable to work in personWhenever I get PEM it usually takes me 3-5 days of laying on a dark room to be able to return to work. Occasionally it'll drag out to where I can't work in person for a month.In context ↗ | Moderate |
| 2026-09-10 | still working in person, with many days missedSafety professional, in person, but I have missed about 70 days this year so far.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Whenever I get PEM it usually takes me 3-5 days of laying on a dark room to be able to return to work.
In context ↗ - Light & noise sensitivity
3-5 days of laying on a dark room
In context ↗