ME/CFS
No benefit
ME/CFS with extreme fatigue and PEM; vitamin IVs no benefit, saline briefly eases OI
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Apr 2021
In their words
- Condition: ME/CFS
after my CFS diagnosis
In context ↗ - Now: No benefit
they did nothing for my extreme fatigue and PEM
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They had IV vitamin therapy for several years before their CFS began, when it was extremely helpful for malabsorption from Celiac disease and SIBO. After their CFS diagnosis the vitamin IVs did nothing for their extreme fatigue and PEM, and they consider them pointless without a deficiency. They still get plain IV saline occasionally, which temporarily eases the orthostatic intolerance that comes with their CFS.
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What they tried
Their words about each treatment
- IV vitamin therapy · No change
They were extremely helpful back then, but after my CFS diagnosis they did nothing for my extreme fatigue and PEM.
In context ↗ - straight IV saline · Helped
I do however go in and get straight IV saline without the vitamins every now and then which temporarily helps the orthostatic intolerance associated with CFS.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | CFS onsetprior to the onset of my CFSIn context ↗ |
| 2021-04-14 | still has extreme fatigue and PEM; plain IV saline temporarily eases orthostatic intoleranceafter my CFS diagnosis they did nothing for my extreme fatigue and PEMIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
they did nothing for my extreme fatigue and PEM
In context ↗ - POTS & dysautonomia
temporarily helps the orthostatic intolerance associated with CFS
In context ↗