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ME/CFS Moderate → no benefit

Worsening exhaustion with ME/CFS and less energy, no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Apr 2024
In their words
  • At worst: Moderateat least I still have a window of time during the day that I can get out and do something ... am not completely bed bound In context ↗
  • Now: No benefitSince getting back I’ve watched my exhaustion get worse and worse. In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

In April 2024 they said they had been depressed about their health and that their exhaustion had worsened steadily since moving back to the United States, a move that was hard on them physically and mentally. They were not completely bed bound and still had a window during the day to leave the house for appointments, but had noticeably less energy than when they lived overseas.

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What they tried

Their words about each treatment
  • Botox · Helped a lotIt would literally freeze my facial muscles but it worked for nearly three months at a time. It was AMAZING. I wasn’t able to get it for a few years and when I started again, they had changed the type of Botox they used. Unfortunately it didn’t really help much. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—ill while living overseas, with noticeably more energy than laterWhen we were overseas I had so much more energy than I do now. In context ↗Not stated
2024moved back to the United States; exhaustion steadily worsenedThe move back to the states was really hard on me, both physically and mentally. Since getting back I’ve watched my exhaustion get worse and worse. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI’ve been really depressed about my health lately. In context ↗

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Asking aboutGlade 69559’s story

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