Long COVID with POTS and palpitations, improved then symptoms returned after reinfection
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
Since the POTS came about with the Long COVID
In context ↗ - At worst: Moderate
my health has meant we've been unable to look for venues or plan anything really
In context ↗ - Now: Relapsed
I appear to have been a bit better of late, so we're hoping next year might be the year
In context ↗ - Began after: COVID
the POTS came about with the Long COVID - and this is my second bout
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Crane 76614 developed long COVID in 2020 with POTS and palpitations; the first bout resolved after about 18 months, followed by six months back to normal. A further COVID infection in 2022 brought the symptoms back, and they were still going strong 3.5 years later, while the tests they were sent for were all normal. By mid-2026 they reported being a bit better and hoped to plan their long-delayed wedding the following year.
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What they tried
What they credit
Their words about each treatment
- Time · Helped a lot
Took me 18 months first time around, but got there in the end!...then I caught COVID again, now at 10 months of round 2
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | Long COVID with POTS began (first bout)the POTS came about with the Long COVID - and this is my second bout, with the first nostly resolving after 18 monthsIn context ↗ | Moderate | |
| 2021 | First bout resolved after 18 months; back to normalTook me 18 months first time around, but got there in the end!In context ↗ | Recovered | Time and spontaneous remission |
| 2022 | Caught COVID again; symptoms returnedafter 18 nonths of synptoms I had a glorious 6 months of being back to normal before I caught COVID againIn context ↗ | Moderate | |
| 2025-10-21 | Still symptomatic 3.5 years after the reinfectionnow at 3.5 years since that one and symptoms still going strong :(In context ↗ | Moderate | |
| 2026-06-30 | Reports being a bit better lately; hoping to plan the wedding next yearI appear to have been a bit better of lateIn context ↗ | Mild | Time and spontaneous remission |
Adverse events
- “Haven't touched the stuff since I noticed it makes me more likely to have palpitations / makes them worse.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
the POTS came about with the Long COVID
In context ↗ - Heart symptoms & palpitations
it makes me more likely to have palpitations / makes them worse
In context ↗
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