ME/CFS
Outcome unclear
Mild ME/CFS, weekly five-minute walk exhausting; sleep apnea found, sleep better
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- May 2024
In their words
- Condition: ME/CFS
I have been diagnosed with both, independently.
In context ↗ - At worst: Mild
I'm mild severity. I do not exercise. I can maybe manage to take a 5 minute walk a week, but it sets me back and exhausts me.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with mild ME/CFS wrote in January 2024 that a five-minute walk a week set them back and exhausted them, so they did not exercise. They took amitriptyline as a preventative and sumatriptan as an emergency med. In January 2024 they also showered after work without a shower stool. By May 2024 they had a sleep apnea diagnosis and slept better and stayed asleep longer, though they had symptoms the apnea did not explain.
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What they tried
Also tried
Their words about each treatment
- amitriptyline · Not said
I take amitriptyline as a preventative and have sumatriptan as an emergency med.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | Mild ME/CFS; a five-minute walk a week set them backI'm mild severity. I do not exercise. I can maybe manage to take a 5 minute walk a week, but it sets me back and exhausts me.In context ↗ | Mild |
| 2024-01-24 | Showered after work without a shower stoolHad a shower after work without needing to use my shower stool, *and* I even moisturised afterwardsIn context ↗ | Mild |
| 2024-05-21 | Sleep better and longer after sleep apnea diagnosis; other symptoms remainWhile my sleep is of better quality and I am able to stay asleep longer there are symptoms I have that are not caused by my sleep apnea.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can maybe manage to take a 5 minute walk a week, but it sets me back and exhausts me
In context ↗ - Headaches & migraine
I take amitriptyline as a preventative and have sumatriptan as an emergency med.
In context ↗ - Sleep problems
While my sleep is of better quality and I am able to stay asleep longer
In context ↗