ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS: too weak to lift head; short walks hit stamina; carbs nauseating, legumes okay
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
As others have said, I have both.
In context ↗ - At worst: Moderate
I keep up and moving around by walking my dog for about 5 minutes multiple times a day. I notice if miss multiple days of walking in a row my stamina and strength are heavily impacted.
In context ↗
Summary
Spruce 75215, posting in r/cfs in September 2024, said they have both ME/CFS and another condition but gave no onset. They walked their dog about five minutes several times a day; skipping days left their stamina and strength heavily affected, and they felt too weak to lift their head to reposition their pillow. They did not tolerate carbs very well, which made them nauseous, though legumes suited them.
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What they tried
Also tried
walking my dog for about 5 minutes multiple times a day· Helpedcomplex carbs in legumes (beans)· Helped
Their words about each treatment
- walking my dog for about 5 minutes multiple times a day · Helped
I keep up and moving around by walking my dog for about 5 minutes multiple times a day. I notice if miss multiple days of walking in a row my stamina and strength are heavily impacted.
In context ↗ - complex carbs in legumes (beans) · Helped
I find the complex carbs in legumes (beans) to be amazing though. They keep quite stuffed with little nausea.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | onset of ME/CFS and POTS, timing not givenAs others have said, I have both.In context ↗ | Not stated |
| 2024-09-25 | still ill; short dog walks several times a day to keep movingI keep up and moving around by walking my dog for about 5 minutes multiple times a day.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
As others have said, I have both.
In context ↗ - Gut problems
I do not tolerate carbs very well or I get nauseous/pukey.
In context ↗ - Muscle weakness
my stamina and strength are heavily impacted. I feel like I can't lift my head up enough to reposition my pillow.
In context ↗