Worsening long COVID symptoms, now much better after nervous-system work and AIP diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Condition: Long COVID
a few weeks after I got Covid, it just felt like every process of my body was breaking down
In context ↗ - At worst: Moderate
it just felt like every process of my body was breaking down... it was scary
In context ↗ - Now: Much better
These things have all significantly improved: ... ability to exercise ... blood pressure regulation
In context ↗ - Began after: COVID
then a few weeks after I got Covid, it just felt like every process of my body was breaking down
In context ↗
Read from 16 of their posts and comments; links to the 11 this page draws on
Summary
Rose's mast cell issues, fatigue, temperature dysregulation, digestive problems and insomnia predated COVID but worsened after it. Nervous-system work (Primal Trust) and the AIP diet left her about 50% better by 2024; microbiome work and fermented foods helped later. A COVID reinfection set her back, but by November 2025 she reported significant improvements in exercise tolerance, heat tolerance, sleep and blood-pressure regulation, though she was not yet fully recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- working with my vagus nerve / 'Simple Exercises to Stimulate the Vagus Nerve' · Helped a lot
The main thing that helped me was the book, "Simple Exercises to Stimulate the Vagus Nerve" by Lienhard and Schmid-Fetzer.
In context ↗ - Primal Trust · Helped a lot
Primal Trust helped certain issues a lot for me. The improvement in exercise intolerance I experienced was amazing!
In context ↗ - AIP (autoimmune protocol) diet · Helped
The AIP diet has also been helpful at some points in my journey.
In context ↗ - staying spiritually connected and open · Helped
I would say that staying spiritually connected and open has made a difference for me.
In context ↗ - fermented foods · Helped
the most helpful things so far have been eating a lot of fermented foods and doing nervous system work
In context ↗ - vitamin B1 · Helped
I just started vitamin B1, and it seems like that is also helping.
In context ↗ - methylation · Helped
learning more about methylation seems to be helpful for me so far
In context ↗ - sunshine and nature · Helped
Interesting that you mention sunshine and nature as I'm also realizing how much these help me too.
In context ↗ - ACT (acceptance and commitment therapy) · Helped
I also think I really benefited from reading about ACT (acceptance and commitment therapy).
In context ↗ - addressing abdominophrenic dyssynergia · Helped
addressing abdominophrenic dyssynergia has been helpful so far
In context ↗ - COVID vaccination as treatment · Not said
The booster gave me symptoms for 24 hours but nothing more than that.
In context ↗
Approaches: CBT & mindset · Alternative therapies · Brain retraining · Diet · Supplements · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a few weeks after getting Covid | illness onset after Covid, on top of pre-existing dysautonomia and autoimmune issuesthen a few weeks after I got Covid, it just felt like every process of my body was breaking downIn context ↗ | Moderate |
| 2024-01-26 | nervous system and vagus nerve work helping; about 50% betterI have also been working on my nervous system for a couple of months ... I'm about 50% better. | Mild |
| 2024-04-17 | getting a lot better with Primal Trust and the AIP dietthe thing that has helped me the most was doing a program called Primal TrustIn context ↗ | Mild |
| 2025-06-22 | exercise intolerance improved less than a week after the brain retraining moduleThe improvement in exercise intolerance I experienced was amazing! And this happened less than a week after I started the brain retraining module.In context ↗ | Mild |
| 2025-08-28 | COVID reinfection set them back quite a bitWhen I got reinfected (with little protection since I was several months out from the vaccine), it set me back quite a bit.In context ↗ | Mild |
| 2025-11-17 | exercise ability, heat tolerance, sleep and blood pressure regulation significantly improvedThese things have all significantly improvedIn context ↗ | Mild |
| 2026-08-05 | not yet fully recovered but continued to get better; addressing gut issues helpedI'm not yet fully recovered ... addressing abdominophrenic dyssynergia has been helpful so far | Mild |
Adverse events
- COVID vaccination as treatment“The booster gave me symptoms for 24 hours but nothing more than that.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I was dealing mostly with mast cell issues
In context ↗ - POTS & dysautonomia
I was dealing with dysautonomia and some autoimmune issues before I got Covid
In context ↗ - Sleep problems
I have also struggled with insomnia, although it has improved.
In context ↗ - Temperature regulation
difficulty regulating my body temperature
In context ↗ - Gut problems
digestive issues
In context ↗
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