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Long COVID Severe → near normalIll 2 years before improving or writing

Long COVID made walking to the bathroom hard, nearly back to normal with time and pacing

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Feb 2022
In their words
  • Condition: Long COVIDI’m just about two years out from my Covid infection in March of 2020. In context ↗
  • At worst: SevereI went from running 25 miles a week and biking 75, to struggling to walk to the bathroom. In context ↗
  • Now: Near normalI basically am other than not being able to run the amount I used to. In context ↗
  • Began after: COVIDI came down with Covid just about 2 years ago
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Crest 85910, a 30-year-old man, developed long COVID after a COVID infection in March 2020, going from running 25 miles a week to struggling to walk to the bathroom. He credits time, sunlight and pacing, and also took magnesium and a probiotic, ate healthily and meditated. He improved at 18 months; by two years he was skiing and doing longer walks and short bike rides, still unable to run as far, with milder flare-ups.

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What they tried

Their words about each treatment
  • magnesium · Not saidI’ve been taking magnesium and a probiotic. In context ↗
  • sunlight · HelpedSunlight was one of the few things that I could tell helped my energy overall In context ↗
  • eating healthy · Not saidEating healthy. In context ↗
  • pacing · HelpedPacing - listen to your body as you ramp up activity. In context ↗
  • meditation · Not saidI also meditate everyday. In context ↗
  • gradually building up walking and cycling · HelpedI just built up how much I did based on how I felt. In context ↗
  • time · Helped a lotI made a positive turn at 18 months. I’ve seen steady improvement throughout In context ↗

Approaches: Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered12 mo15 mo18 mo21 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020COVID infectionI’m just about two years out from my Covid infection in March of 2020 In context ↗Not stated
a year outexhausted for weeks after a 2-mile bike ride, on the couch for a monthWhen I was a year out I would ride my bike 2 miles and then be exhausted for weeks. It could put my on the couch for a month and I’d hardly have the energy to make dinner. In context ↗Severe
18 monthspositive turn, steady improvement; began walking againI made a positive turn at 18 months. I’ve seen steady improvement throughout In context ↗ModerateTime and spontaneous remission
2022-02-27skiing, longer walks and short bike rides, milder flare-upsI basically am other than not being able to run the amount I used to. In context ↗Near normalPacing and the energy envelope

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaThe HR issues occurred closer to the beginning of my long haul when I developed POTS. In context ↗

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