ME/CFS
Severe → near normal
Housebound, borderline bedbound with ME/CFS, now nearly back to normal by calming nerves
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
my hypotension is a huge part of my symptoms and the stress on my body that leads to PEM
In context ↗ - At worst: Severe
That last paragraph is how I lived my life and is the reason I ended up housebound borderline bedbound for a while.
In context ↗ - Now: Near normal
right now I'm able to work out almost as much as I did 10 years ago, when I had dreams of being an endurance athlete. The big difference is doing fewer sprints! But even a few them, without a whisper of PEM being on the horizon.
In context ↗
Summary
Badger 29991 became housebound and borderline bedbound for a while after ignoring their nervous system's signals, with hypotension a major part of their symptoms and a driver of their PEM. By late 2026 they were in remission, working out almost as much as a decade earlier, doing fewer sprints, with no PEM on the horizon; cold weather remained their biggest trigger. They pointed to calming and desensitising the nervous system.
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What they tried
Also tried
Their words about each treatment
- red wine · No change
I tried it for a week: didn't work, but didn't trigger PEM either
In context ↗ - took it easy · Helped
So I stopped, took it easy for a week, and bounced back.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | housebound, borderline bedboundI ended up housebound borderline bedbound for a whileIn context ↗ | Severe |
| 2026-10-02 | in remission, able to function and tolerate a drinkI'm also pretty much in remission right nowIn context ↗ | Near normal |
| 2026-10-20 | working out almost as much as ten years earlier, no PEMright now I'm able to work out almost as much as I did 10 years ago, when I had dreams of being an endurance athleteIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my hypotension is a huge part of my symptoms and the stress on my body that leads to PEM
In context ↗ - POTS & dysautonomia
my hypotension is a huge part of my symptoms
In context ↗ - Temperature regulation
my biggest trigger is cold weather
In context ↗