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Long COVID Mild → no benefitIll for 6 months

Long COVID waking unrefreshed at six months; Seroquel and CPAP gave no overall benefit

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
6 months
Last post
Aug 2024
In their words
  • Condition: Long COVIDI have long COVID (as far as I can tell) In context ↗
  • At worst: MildI never feel refreshed after I sleep. It takes me until midday before I feel awake. I have no other symptoms. In context ↗
  • Now: No benefitI am guessing this will continue for the rest of my life. In context ↗
  • Began after: COVIDI got COVID in March or something, and ever since, I never feel refreshed after I sleep. In context ↗
  • Says they never had: Post-exertional malaiseI don't get any so-called "post-exertional malaise"
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Marsh 38057 developed long COVID after a COVID infection around March 2024 and six months on still woke unrefreshed, taking until midday to feel awake. They had no other symptoms and no post-exertional malaise, and said exercise made them feel better. For poor sleep and nightmares they took half a 25 mg Seroquel tablet, which helped them sleep but weakened their muscles; CPAP did not help. They gained weight from comfort eating.

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Asking aboutMarsh 38057’s story

What they tried

Their words about each treatment
  • exercise · HelpedI feel better if I exercise In context ↗
  • sleep therapy · Not saidI have been through the whole sleep therapy circuit In context ↗
  • CPAP machine · No changehave a CPAP machine which I use, but it doesn't help any In context ↗
  • Seroquel (Quetiapine) · HelpedI take half of a 25mg Seroquel tablet to help me sleep ... I find it makes my muscles feel weak In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2024COVID infection followed by never feeling refreshed after sleepI got COVID in March or something, and ever since, I never feel refreshed after I sleep. In context ↗Mild
2024-08-26still waking unrefreshed, poor sleep with nightmares, taking SeroquelI have terribly poor sleep. I often have distressing nightmares about asphyxiation In context ↗Mild

Adverse events

  • Quetiapine (Seroquel)“I take half of a 25mg Seroquel tablet to help me sleep. I sure get to sleep on time, but I find it makes my muscles feel weak.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI never feel refreshed after I sleep In context ↗
  • Muscle weaknessit makes my muscles feel weak In context ↗
  • Heart symptoms & palpitationswaking from the distressing dreams with a sore chest In context ↗

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