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ME/CFS Mild → no benefitIll for 1 year

Extreme fatigue for over a year with ME/CFS, no benefit from a B12 patch

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
1 year
Last post
Jan 2025
In their words
  • Condition: ME/CFSI’m not sure if I have CFS or not but it’s something I’m looking into ... I have been having extreme fatigue for over a year now In context ↗
  • At worst: MildI can also exercise regularly but it takes a mighty dose cellucore C-4 to get me out the door and sometimes that doesn’t work. In context ↗
  • Now: No benefitit has gotten so bad that I think there has to be something else going on In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

In January 2025 they reported extreme fatigue for over a year, having put it down to depression and PTSD, and dozing off within a couple of hours of waking. They could still exercise regularly but needed a large dose of pre-workout C4 to get out the door. A slow-release B12 patch did nothing and an orange gave 30 minutes of energy. They were unsure whether it was CFS and planned to have testosterone checked.

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What they tried

Also tried

cellucore C-4· Helpedeating an orange· HelpedCoffee and energy drinks· No changeslow release b-12 patch· No changethe machine· Not said
Their words about each treatment
  • the machine · Not saidI have it and use the machine consistently. In context ↗
  • Coffee and energy drinks · No changeCoffee and energy drinks don’t touch it. In context ↗
  • cellucore C-4 · Helpedit takes a mighty dose cellucore C-4 to get me out the door and sometimes that doesn’t work In context ↗
  • slow release b-12 patch · No changeI’m wearing a slow release b-12 patch daily but it doesn’t phase me. In context ↗
  • eating an orange · HelpedI have found that eating an orange will give me a quick boost of energy for 30 minutes tops. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
onsetextreme fatigue began over a year before January 2025I have been having extreme fatigue for over a year now In context ↗Not stated
January 2025fatigue worsened; dozing off within hours of wakingit has gotten so bad that I think there has to be something else going on In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI can’t sit down without falling asleep and it seems like within a couple of hours from when I wake up I am dozing off. In context ↗
  • Anxiety & low moodhave chalked it up to depression/PTSD In context ↗

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