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ME/CFS Moderate → no benefit

ME/CFS moderate after not pacing, now moderate; no recovery with Wim Hof breathing

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Feb 2024
In their words
  • Condition: ME/CFSI kept my CFS as mild for a long time because I was taking cold showers In context ↗
  • At worst: ModerateI didn't know I had CDs so wasn't pacing, and I'm now moderate In context ↗
  • Now: No benefitI kept my CFS as mild for a long time because I was taking cold showers, but I didn't know I had CDs so wasn't pacing, and I'm now moderate In context ↗
Read from 4 of their posts and comments; links to the 2 this page draws on

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Summary

Badger 45250 described having CFS that stayed mild for a long time while taking cold showers, then becoming moderate after not pacing. They credited Wim Hof breathing with reducing inflammation and said it probably saved their life; cold showers also reduced inflammation. They also used weed and about a gram of vitamin C as things that helped them. In their posts they said they were now moderate, with no overall recovery reported.

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What they tried

Their words about each treatment
  • Weed · HelpedThis is what helps me, but to be clear, that is just me, everyone is different Weed In context ↗
  • Vitamin c · HelpedThis is what helps me ... Vitamin c, about a gram In context ↗
  • Wim Hof breathing · Helped a lotI think wim hof makes the most difference ... Wim hof probably saved my life
  • Cold showers · HelpedI kept my CFS as mild for a long time because I was taking cold showers In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—CFS kept mild for a long timeI kept my CFS as mild for a long time In context ↗Mild
2024-02-11became moderate after not pacingI didn't know I had CDs so wasn't pacing, and I'm now moderate In context ↗Moderate

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