Long COVID, mostly bedbound at worst, now relapsed repeatedly
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Nov 2022
In their words
- Condition: Long COVID
I (24f) got sick in October 2020 so I was already longhauling for a while before vaccines were even available here.
In context ↗ - At worst: Severe
I was literally back to square one (mostly bedbound)
In context ↗ - Now: Relapsed
was almost back to normal around October/November 2021 ... but then I caught a cold (December 2021) and was back to square one
In context ↗ - Began after: COVID
I (24f) got sick in October 2020 so I was already longhauling for a while before vaccines were even available here.
In context ↗
Summary
Swan 39096 fell ill with long COVID in October 2020. Two Pfizer shots in 2021 left her feverish for a day or two, then she improved and was almost back to normal by late 2021. A cold that December put her back to square one, mostly bedbound, and a January 2022 booster did nothing. Since then she has relapsed repeatedly, blaming pressure at work and losing her income.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pfizer vaccine (3 shots) · Helped a lot
After the 2nd I started proper recovering, was almost back to normal around October/November 2021
In context ↗ - Caffeine · Worse
Caffeine helps a little bit with the fatigue, the problem is even one cup in the morning means I can't sleep at night, and then I'll feel even worse the next day.
In context ↗
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2020 | fell ill and began long-haulingI (24f) got sick in October 2020 so I was already longhauling for a while before vaccines were even available here.In context ↗ | Not stated | |
| 2021 | improved a bit after the first two Pfizer shotsThe first 2 shots made me sick for a day or 2, including a fever, but then I improved a bit.In context ↗ | Not stated | COVID vaccination as treatment |
| October/November 2021 | almost back to normal, with real good dayswas almost back to normal around October/November 2021, bad days were bad days (and not bad weeks, actual good days happened as well)In context ↗ | Near normal | COVID vaccination as treatment |
| December 2021 | caught a cold and was back to square one, mostly bedboundI was literally back to square one (mostly bedbound)In context ↗ | Severe | |
| June 2022 | relapse after relapse from being pushed at workNow it's relapse after relapse... Work is to blame, they're getting impatient so I'm often forced to try again when I'm not ready yet.In context ↗ | Severe | |
| September 2022 | no real improvement, relapsing when pushed, lost incomeI haven't really improved since, each time I improve a little bit, I get pushed too much and relapse againIn context ↗ | Severe |
Adverse events
- COVID vaccination as treatment“The first 2 shots made me sick for a day or 2, including a fever” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
each time I improve a little bit, I get pushed too much and relapse again
In context ↗
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