ME/CFS
Moderate → relapsed
ME/CFS-like illness after EBV, improving then relapsed to 10 minutes walking
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2021
In their words
- Condition: ME/CFS
I'm not even sure if I have cfs/m.e. or am still in the post viral fase of my grandular fever.
In context ↗ - At worst: Moderate
about 7 months ago I was able to walk for an hour without resting. (Now I'm down to about 10 min)
In context ↗ - Now: Relapsed
I felt like I was recovering from my mononucleosis/EBV. But then I did too much and relapsed
In context ↗ - Began after: glandular fever or EBV
I felt like I was recovering from my mononucleosis/EBV
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Oak 14068 developed an ME/CFS-like illness after mononucleosis/EBV, with EBV and CMV reactivation on testing. About seven months before January 2021 they could walk an hour without resting and felt they were recovering, but overdid it and relapsed, dropping to about 10 minutes of walking. They were unsure whether they had ME/CFS or were still post-viral.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | mononucleosis/EBVI felt like I was recovering from my mononucleosis/EBVIn context ↗ | Not stated |
| about 7 months before January 2021 | could walk an hour without restingabout 7 months ago I was able to walk for an hour without restingIn context ↗ | Mild |
| — | relapsed after doing too muchBut then I did too much and relapsed, I wasn't as educated on things like pacing then.In context ↗ | Moderate |
| January 2021 | down to about 10 minutes of walkingNow I'm down to about 10 minIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
But then I did too much and relapsed
In context ↗