ME/CFS
Mild → no benefitIll for 25 years
25 years of fatigue after mono in ME/CFS, no benefit from exercise or Adderall
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 25 years
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
I’m undiagnosed currently, 25 years of fatigue following mono.
In context ↗ - At worst: Mild
the exhaustion exercise causes me
In context ↗ - Now: No benefit
adderall just really gets you moving for a little while and then I was back to zero
In context ↗ - Began after: glandular fever or EBV
25 years of fatigue following mono
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Crest 52933 had 25 years of fatigue following mono, undiagnosed as of April 2022. They reported autoimmune markers that came and went, major systemic inflammation, and sleep apnea that later resolved. Exercise lifted them mentally but drained them physically so they would not move for the rest of the day; adderall helped only briefly before they were back to zero. They turned down a second rheumatology visit.
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What they tried
Also tried
Their words about each treatment
- adderall · Helped
A year ago I thought being diagnosed as ADHD was that “it” but haha, adderall just really gets you moving for a little while and then I was back to zero.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | fatigue began after mono25 years of fatigue following monoIn context ↗ | Not stated |
| 2022-04-14 | still undiagnosed, long-standing fatigue and exertion intoleranceI’m undiagnosed currently, 25 years of fatigue following mono.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It helps me mentally but physically it’s so draining I won’t want to move the rest of the day.
In context ↗ - Sleep problems
I even had sleep apnea and then didn’t!
In context ↗