ME/CFS
Severe → no benefitIll for 10 years
ME/CFS from 2012, barely leaving the house by early 2022, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 10 years
- Last post
- Feb 2022
In their words
- Condition: ME/CFS
I managed a relatively "normal" life (with CFS/me) from 2012 to around 2017/8.
In context ↗ - At worst: Severe
I spend enough time being able to do almost nothing ... I barely leave my house
In context ↗ - Now: No benefit
from which I've never fully medically recovered
In context ↗
Summary
Pelican 78087 had CFS/ME from 2012, managing a relatively normal life until 2017/18, when a hugely stressful period triggered a decline from which they never fully recovered. By early 2022 they could do almost nothing, barely left the house, and summed up their day as getting dressed and reaching the sofa. They declined a COVID booster after two doses hit them hard, the first being Moderna, and had a history of severe anxiety treated with medication.
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What they tried
Also tried
the right medication (for anxiety)· HelpedModerna COVID vaccine· Worse
Their words about each treatment
- Moderna COVID vaccine · Worse
the first one hit me like a sack of sh*t, second one wasn't much better
In context ↗ - the right medication (for anxiety) · Helped
I used to suffer with severe anxiety until I found the right medication
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2012 | CFS/ME began; managed a relatively normal lifeI managed a relatively "normal" life (with CFS/me) from 2012 to around 2017/8.In context ↗ | Mild |
| 2017/8 | huge stressful period brought on a big downfallI still believe my big downfall was brought on by a hugely stressful period from which I've never fully medically recovered.In context ↗ | Moderate |
| 2022-02-24 | still largely housebound, day summed up by getting to the sofaYay I made it to the sofa. That's pretty much my day summed up.In context ↗ | Severe |
Adverse events
- COVID vaccination as treatment“the first one hit me like a sack of sh*t, second one wasn't much better.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I used to suffer with severe anxiety until I found the right medication
In context ↗ - Temperature regulation
I find my changes with the weather. I'm terrible in winter but when the sun comes out I start to pick up.
In context ↗