ME/CFS
Moderate → no benefit
ME/CFS, much time in bed, no benefit from off-label drugs; now pacing carefully
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
sometimes PEM crashes happen despite my best efforts at pacing
In context ↗ - At worst: Moderate
I spent a lot of time in bed, had to push off deadlines at work, take time off
In context ↗ - Now: No benefit
I've recently gone through another round with doctors and blood tests and off-label drugs, and still nothing is working.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with ME/CFS tried doctors, blood tests and off-label drugs with nothing working, and stopped appointments for about three years. Nearly three years before October 2025, a spouse's affair wrecked them for several months; they spent much time in bed and took time off work. By mid-2026 they paced carefully, buffered rest around events and did their best to avoid crashes, though driving was very hard.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- meohealth app · No change
I have been using it for a couple months now with no improvement to HRV
In context ↗ - pacing · Helped
I do my best to avoid crashing, and I know my limits now, so I can pace pretty well.
In context ↗ - off-label drugs · No change
I've recently gone through another round with doctors and blood tests and off-label drugs, and still nothing is working.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late 2022 | spouse's affair wrecked them for several monthsNearly 3 years ago, I found out that my spouse (to be ex-spouse) was having an affair, and it wrecked me for several months. I spent a lot of time in bed, had to push off deadlines at work, take time offIn context ↗ | Moderate |
| 2026-07-13 | pacing well and avoiding crashes, but driving and events are hardI do my best to avoid crashing, and I know my limits now, so I can pace pretty well.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
sometimes PEM crashes happen despite my best efforts at pacing
In context ↗ - Light & noise sensitivity
I can't watch moving things for too long.
In context ↗