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Long COVID Moderate → somewhat better

Blurred vision in long COVID flares, somewhat better on eye drops and low-dose naltrexone

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Nov 2024
In their words
  • Condition: Long COVIDit tended to correlate with my Long Covid symptom severity - if I was having a flare, the vision was worse In context ↗
  • At worst: ModerateI went from chronic fatigue, fighting to stay awake all day In context ↗
  • Now: Somewhat betterStill some daytime fatigue, but I am able to sleep better at night. In context ↗
  • Began after: COVIDit tended to correlate with my Long Covid symptom severity In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with long COVID had blurred vision in both eyes that worsened with flares; over-the-counter eye drops helped over weeks to months, though it still returns in dry winter months or bad flares. From summer 2024 low-dose naltrexone was a game changer: 1.5 mg did little, 3 mg worked too well and sometimes kept them up until 4-6am, and home-compounded 2 mg was the sweet spot, leaving some daytime fatigue but better sleep. Energy still dips around 3-4pm.

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What they tried

What they credit

Also tried

over-the-counter eye drops· Helped
Their words about each treatment
  • over-the-counter eye drops · HelpedIt took weeks/months of over-the-counter eye drops but it has gotten better. In context ↗
  • LDN · Helped a lotI too started LDN this summer and it's been a game changer for me as well. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—long COVID with flares and blurred visionit tended to correlate with my Long Covid symptom severity In context ↗Not stated
before summer 2024chronic fatigue, fighting to stay awake all day, afternoon crashesI went from chronic fatigue, fighting to stay awake all day In context ↗Moderate
2024-08-29blurred vision eased with over-the-counter eye dropsIt took weeks/months of over-the-counter eye drops but it has gotten better In context ↗Not stated
2024-11-16started low-dose naltrexone in the summer; a game changer at 2 mgI too started LDN this summer and it's been a game changer for me as well In context ↗MildLow-dose naltrexone
2024-11-28good hours late morning, crash around 3-4pm, feels almost normal lying down at nightI tend to have a few hours late morning/early afternoon when I feel better, then crash again around 3-4pm In context ↗Mild

Adverse events

  • Low-dose naltrexone“3mg actually worked a little too well - I went from chronic fatigue, fighting to stay awake all day to not being able to sleep well at night, some nights staying up til 4, 5, or 6am.” In context ↗ Insomnia from treatment

Symptoms mentioned

Their words about their symptoms
  • Vision problemsit has gotten better. Now it tends to just occur in the dry winter months or if I have a bad LC flare In context ↗

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