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ME/CFS Severe → recoveredIll 8 years before improving or writing

Bedridden with ME/CFS, now recovered after a low-carb high-fat diet

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
8 years
Last post
May 2020
In their words
  • Condition: ME/CFSI'm Japhet and I'm looking for ways to help and support people with CFS/ME. I recovered from this myself In context ↗
  • At worst: SevereI'm thankful to say that I went from 10 to 100 over the course of about 8 years. In context ↗
  • Now: RecoveredI went from 10 to 100 over the course of about 8 years. Diet was everything. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Japhet was bedridden with CFS/ME and rated themselves 10 out of 100. Over about eight years they recovered to 100, crediting a low-carb, high-fat diet without sugar, grains or inflammatory foods; cutting sugar and grains controlled their IBS and gave them more energy, and lowering carbs further stabilised their energy. They also used SSRIs for anxiety, which dulled them, then meditation, and worked on sleep and rest.

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What they tried

Also tried

Take control of my own life· HelpedSSRIs· Helped
Their words about each treatment
  • Low-carb, high-fat diet · Helped a lotDiet was everything. Low carb, high fat, cut veggie oils, eat meat. In context ↗
  • Take control of my own life · HelpedIt was fundamentally about taking full responsibility for my recovery and for my happiness. In context ↗
  • SSRIs · HelpedOne thing that helped with this was SSRIs, but those also dulled my spirit in some ways and I wouldn't recommend them. In context ↗
  • Meditation · HelpedI later found meditation and this had a much better effect. In context ↗
  • Prioritize sleep, rest, downtime · HelpedIt took years to get my sleep under control ... These are all so very necessary for healing. In context ↗

Approaches: Diet · Mind-body practices · Pacing

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—Bedridden with CFS/MEI went from bedridden to only somewhat bedridden. In context ↗Severe
—Cutting out sugar and grains improved energy and controlled IBSCut out sugar and grains ... gave me lots more energy. In context ↗SevereKeto and low-carb diets
—Lowering carbs further stabilised energy and was critical for recoverynow thrive without carbs. This was critical for my recovery. In context ↗MildKeto and low-carb diets
2020-05-02Rated themselves 100 after about eight yearsI went from 10 to 100 over the course of about 8 years. Diet was everything. In context ↗RecoveredKeto and low-carb diets

Adverse events

Symptoms mentioned

Their words about their symptoms

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