what has worked for you
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 3+ years housebound; symptomatic since at least 2009
- Published
- Oct 2014
Summary
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but improved gradually week-by-week using kinesiology, ivermectin, high-dose probiotics, rotating antibiotic combinations and anti-biofilm supplements, then treated presumed Lyme/Bartonella with antibiotics, a simplified methylation protocol, GcMaf/Bravo probiotic and 1st Line/lactoperoxidase-thiocyanate - which he says had "the greatest effect" - taking his Bell's score from 10 to 50. He frames it as ongoing incremental progress rather than a finished cure, with no relapse reported.
What they credit
Credits Antibiotics, Graded exercise, Biologics & antibodies, Supplements, Antiparasitics, B12 injections and methylation, Doxycycline and other antibiotics, GcMAF, Goleic and Bravo yoghurt, Graded exercise / graded activity, Ivermectin, Lyme / co-infection protocols, Minocycline, Probiotics and fermented foods.
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