Antibiotics

Side effects and harms people mentioned

Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Antibiotics itself. Read the story before drawing conclusions.

• Insomnia from treatmentLyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone all failed and instead left him with months of severe insomnia.
  Martin's Paradoxical Temporary ME/CFS Remission Story
• Side effectsShe discontinued after four months due to accumulating side effects, and by her final post symptoms had returned roughly six weeks after stopping.
  Doing well on azythromycin
• Refeeding or deficiency problemsWithin three weeks of refeeding he had regained the weight, and his old headaches returned once he resumed his glutathione and fenbendazole regimen, leaving the benefit only partly sustained.
  The Master Cleanse
• Made symptoms worseOver several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but improved gradually week-by-week using kinesiology, ivermectin, high-dose probiotics, rotating antibiotic combinations and anti-biofilm supplements, then treated presumed Lyme/Bartonella with antibiotics, a simplified methylation protocol, GcMaf/Bravo probiotic and 1st Line/lactoperoxidase-thiocyanate - which he says had "the greatest effect" - taking his Bell's score from 10 to 50.
  what has worked for you
• Liver or kidney problemsHe later stopped all three drugs after his liver enzymes rose but says he "held on to my gains" afterward.
  One year follow-up valcyte, colchicine, and doxycycline
• Herx / die-off reactionAfter 9 years of illness with significant fatigue and brain fog, an antibiotic protocol (drugs/doses not specified in this post) produced about 4 months of a severe Herxheimer-type reaction before it passed.
  Improving with ABX, finally?
• Side effectsIn the following roughly 10 days he gained 5kg up to his ideal weight without eating more or exercising, regained a normal early sleep/wake rhythm with 8 hours' sleep, and put his energy at "50-70% (depending on the day)." He is hopeful but hedges heavily - "cross fingers," "I expect ups and downs," "we'll see" - since it is a short window of improvement after a long, severe reaction.
  Improving with ABX, finally?
• Side effectsAfter three months her CMV lymphocyte stimulation index dropped from 65 to 30 and she reported "feeling better" overall, gaining enough energy for the gym twice weekly, though with significant side effects she called the "drug from hell" (muscle and bone pain).
  Starting to see moderate success on Valcyte against CMV
• HospitalisationTreating Lyme, Bartonella, Babesia and EBV, she reports her body "reacts terribly" to GcMAF, with worsening reactions across multiple injections that came "close to ER trips." She stopped GcMAF on her new practitioner's advice in favor of antibiotics and IV treatment, reporting no benefit and significant harm instead.
  Did KDM's treatment help you or did you get worse?

• I'm normal now. Here's my promised update for y'all

  Full recovery ME/CFS SevereIll 7 years forums.phoenixrising.me Jun 2026

  Started with IFN lambda combined with GS-441524 for underlying Enterovirus B infections, which brought about 60% improvement, then moved to a multi-drug antiviral regimen described as molnupiravir, GS-441524, Vermurafenib, ribavirin and pleconaril plus…

• Dysautonomia and unrefreshing sleep disappearing immediately after nasal application of dexamethasone

  Relapsed ME/CFS ModerateIll 4 yearsEffect faded forums.phoenixrising.me · sells Feb 2026

  Lalique reports that a steroid/antibiotic combination nasal spray dramatically improved her dysautonomia markers within days - lower resting heart rate, disappearing stress readings and full "body battery" recharge on her Garmin, and refreshing sleep for the…

• Mild NAC success story (godlovesatrier)

  Partial ME/CFS Effect faded forums.phoenixrising.me Sep 2025

  During a relapse related to antibiotic treatment, this poster says NAC, built up very slowly from 25mg to 1.2g twice daily, was the main thing allowing him to function and helped him recover from the worst post-exertional crashes. He stresses the importance…

• Martin's Paradoxical Temporary ME/CFS Remission Story

  Relapsed ME/CFS Very severeIll 10 yearsEffect faded healthrising.org Jul 2024

  Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone…

• Flo Stops the Leaks in Her Boat at Last

  Near-full ME/CFS SevereIll 37 years healthrising.org · sells May 2024

  Flo became ill with ME/CFS and fibromyalgia after mold exposure roughly thirty-seven years before the post, at her worst unable to watch TV, read or follow conversations, with regular vertigo. Years of craniosacral therapy, PRP injections, hydrogen peroxide…

• My experiences with apoptosis treatment for HHV-6b, EBV subgroup ME/CFS

  Partial ME/CFS SevereIll 17 years forums.phoenixrising.me Feb 2024

  Built a long-running self-treatment stack over 15 years - artemisinin, galangal and magnolia bark to unblock apoptosis, a sublingual terpene mix (pinene, beta-caryophyllene, limonene) dosed 20-60 drops, curcumin, and doxycycline for the bacterial component -…

• [Case study] CFS/ME remission story severe patient [2008]

  Substantial ME/CFS Severe forums.phoenixrising.me Sep 2023

  A severe ME/CFS patient documented in a 2008 case report used a year of tapering immunoglobulin dosing alongside gut-repair supplements and antibiotic treatment for mycoplasma, progressing from severe to mild over the 12 months of treatment. Immunoglobulin…

• The Healing Dudes: Getting out of Long Covid and Chronic Lyme together

  Partial Long COVID Ill 4.5 yearsEffect faded healwithliz.com · sells Jul 2023

  Credits nervous system, meditation and community. Joe was ill 4-5yr Lyme then LC relapse with long COVID and reports a partial improvement. Relapsed into long covid after Lyme recovery.

• The Healing Dudes: Getting out of Long Covid and Chronic Lyme together

  Partial Long COVID SevereIll 17 years healwithliz.com · sells Jul 2023

  Credits nervous system, meditation and community. Josh was ill 17 years with severe long COVID and reports a partial improvement. Chronic Lyme primary; "incredible progress," not cure.

• A Rapamycin Resurgence: An MD Moves the Needle on his ME/CFS

  No benefit ME/CFS Very severeIll 10 years healthrising.org Jul 2022

  Liver derivative complex (Nexavir) was one of more than a dozen treatments he listed trying, alongside antidepressants, antivirals, erythromycin, doxycycline, NAC and others, with no dose or duration specified for it individually. He had been very severely…

• List of ME/CFS Recovery and Improvement Stories (page 4-5 discussion)

  Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me 2022

  unicorn7 used a De Meirleir-style multi-part protocol (SIBO antibiotics, LDN, B12, subcutaneous immunoglobulin, mesalazine, plus strict pacing) to move from moderate to mild ME/CFS, and reported repeating that same moderate-to-mild recovery a second time…

• REMISSION! (suspected enterovirus, Dr. Chia treating)

  Near-full ME/CFS Moderate forums.phoenixrising.me Apr 2021

  Under Dr. Chia's care for suspected enterovirus, .jm. built up to running 40 miles/week by an April 2021 update (up from an initial "REMISSION!" post 18 months earlier), with insomnia and Raynaud's resolved, while tapering oxymatrine down to a maintenance…

• Recovery stories: parasites cleanse

  Partial ME/CFS forums.phoenixrising.me Apr 2021

  In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…

• Does anyone with CFS get back to 100% ever?

  Partial ME/CFS SevereIll 4 years forums.phoenixrising.me Aug 2020

  uglevod's treatment was the Marshall Protocol (MP, per mpkb.org), an antibiotic-based regimen; the post doesn't give specific drugs or doses, only that it was "brutal," especially in the first 1.5 years, with blood work resembling "mild chemo." The post…

• The best thing I have done is to say: no way will I accept my daughter will suffer

  Full recovery ME/CFS SevereIll 8 months recoverynorway.org Jun 2020

  Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…

• List of ME/CFS Recovery and Improvement Stories

  Full recovery ME/CFS Severe forums.phoenixrising.me · sells Jun 2020

  Received FMT (fecal microbiota transplant) treatment at the Taymount Clinic for a severe, chronic-Lyme-linked ME/CFS-like illness; this page gives no session count, dosing, or other protocol detail. It describes a three-level gain and a full recovery…

• ME/CFS Patient Goes into Remission After Taking Elixir of Youth (GDF11)

  Substantial ME/CFS Very severeIll 10 years forums.phoenixrising.me May 2020

  beatsmyth, bedbound for a decade with CFS/fibromyalgia, had already improved his gut and skin issues on an 8-month antibiotic protocol before adding BPC-157 and LL-37 peptides for three months, which he called "absolutely miraculous": remaining stomach…

• Getting Results, increased activity

  Partial ME/CFS forums.phoenixrising.me Jan 2020

  Returning years after his 2014 ARV thread, describes a newer multi-drug stack - disulfiram (Antabuse) escalated from 125mg to 250mg twice weekly over four months with alpha lipoic acid the following morning, plus clarithromycin/rifampin/minocycline for…

• The Temporary Recovery Stories (Rose)

  Relapsed ME/CFS Ill 40 yearsEffect faded healthrising.org Jan 2020

  Commenter Rose, ill for about forty years, described having had seven remissions of varying length since her teens. She mentioned a recent near-remission week that followed a course of antibiotics for a chest infection.

• The Suffering of One - Relieved: Kyle McNease's ME/CFS Recovery Story Detailed

  Near-full ME/CFS Very severeIll 3.5 years healthrising.org Sep 2019

  Kyle McNease, an Oxford student, became severely ill for three and a half years after arsenic poisoning from renovating an old barn, compounded by genetic detoxification impairments; at his worst he was emaciated, unable to communicate and near death. He…

• 3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast

  Full recovery ME/CFS Very severeIll 33 years cfsunravelled.com · sells Jun 2019

  Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…

• Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness

  Full recovery ME/CFS SevereIll 10 years cfsunravelled.com · sells May 2019

  Credits diet, chiropractic and IV therapy. Kiki was ill 10y with severe ME/CFS and is described as fully recovered. Jugular venoplasty surgery plus NUCCA chiropractic.

• Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS

  Full recovery ME/CFS SevereIll 5 years cfsunravelled.com · sells Apr 2019

  Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…

• Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT

  Full recovery ME/CFS Very severeEffect faded forums.phoenixrising.me Feb 2019

  Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…

• Did finding an infection via Armin Labs have a positive influence on your treatment & recovery

  Partial ME/CFS Severe forums.phoenixrising.me Jan 2019

  Antibiotics for Borrelia found via Armin Labs testing gave her relief from "the unrelenting horror of Lyme disease pain and malaise," but she reports the years of undiagnosed infection left lasting autoimmune-type sequelae -- severe POTS, muscle weakness,…

• This illness will last for a long time. And why is that? Because I am already prepared to die – inside

  Full recovery ME/CFS Very severeIll 8 months recoverynorway.org Jan 2019

  Attended a one-on-one Lightning Process course over four days (22-25 April 2014) in Kings Langley, Hertfordshire, England, with trainer Heather Thomas, after her mother had already tried acupuncture, natural pills, syrups, oils, restricted diets and herbs…

• Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though

  Substantial ME/CFS Very severeIll 30 years forums.phoenixrising.me Jan 2019

  After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…

• How I put ME/CFS into remission....& even better

  Substantial ME/CFS Very severeIll 3.5 years forums.phoenixrising.me Oct 2018

  Cleared gut dysbiosis with antibiotics, then underwent 9-12 encapsulated FMT infusions from his daughter over two months alongside a strict prebiotic diet. Initially estimated "around 65-70% recovered," then reports surpassing his pre-illness baseline --…

• KDM - success of fixing the gut

  Partial ME/CFS ModerateEffect faded forums.phoenixrising.me Dec 2017

  Cycled through antibiotics and probiotics for gut dysbiosis; after about three months she went "from moderate to mild," with IBS "almost non-existent," but overexertion caused a relapse and she now needs ongoing rifaximin to control bloating ("when I start…

• Tenofovir (Viread) / Raltegravir (Isentress) Cures ME/CFS Patient Sick for 20 Yrs + Tenofovir Poll

  Full recovery ME/CFS Ill 20 years forums.phoenixrising.me Oct 2017

  Took tenofovir and raltegravir continuously for four years for ME/CFS that began after a measles/rubella/polio booster as a teenager, with extensive testing having ruled out Lyme disease. Quoted directly as saying "After 20 years of ME I am now cured. My 4th…

• Gaps diet put me in direction to recovery

  Partial ME/CFS forums.phoenixrising.me Sep 2017

  After repeated antibiotic courses over the years triggered his illness, he adopted a GAPS-like diet along with herbs for dysbiosis and probiotics, describing himself as "making good progress" in his recovery without claiming it complete.

• Doing well on azythromycin

  Relapsed ME/CFS SevereEffect faded forums.phoenixrising.me Jul 2017

  After 35-plus years of symptoms, including 15 years of joint/back pain and fatigue she likened to ankylosing spondylitis and feeling "half dead with pain and fatigue" going in, took azithromycin 500mg/day for bronchitis and found her joint and back pain…

• "Death Rider": A (Hopeful) Mold Illness Story

  Substantial ME/CFS Very severeIll 5 years healthrising.org Apr 2017

  After moving into a moldy house around 2011, former endurance cyclist Chris Graber declined over several years into a wheelchair- and oxygen-dependent state with a central IV line, initially misdiagnosed as Lyme disease. Once Dr. Ritchie Shoemaker identified…

• Objective CPET improvement & remission on ketogenic diet

  Substantial ME/CFS forums.phoenixrising.me Mar 2017

  Unable to tolerate a full ketogenic diet, this poster followed a looser low-carb, high-fat approach alongside antibiotic herbs and a course of Rifaximin, reporting energy "way up" and PEM "very much improved." Presented as a straightforward success with no…

• A Fibromyalgia Patient Finds Help with Antivirals

  Substantial ME/CFS SevereIll 8 years healthrising.org · sells Aug 2016

  Melissa followed Dr. Lerner's antiviral protocol after testing positive for active cytomegalovirus and Epstein-Barr virus, taking unspecified antibiotics and antivirals; the page does not give exact drug names or doses. She had developed fatigue, postpartum…

• The Master Cleanse

  Partial ME/CFS ModerateIll 14 years howirecovered.com Apr 2016

  Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…

• Rimfaximin seems to have helped my gut

  Substantial ME/CFS Moderate forums.phoenixrising.me Dec 2015

  After years of rolling gut pain, alternating bowel habits and frequent migraines, she took Rifaximin 400mg three times daily for 10 days, followed by five days of Azithromycin plus a probiotic and enzyme/fiber regimen. Following the Azithromycin course her…

• Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Alice)

  Partial ME/CFS Ill 6 years healthrising.org Sep 2015

  Alice commented that after six years of fibromyalgia she felt much better than she had in years for about six weeks after starting a herbal antimicrobial protocol, a mushroom combination, megadose vitamin C, ashwagandha and L-phenylalanine. The improvement…

• Doing So Well On Modified Cowden Protocol

  Substantial ME/CFS SevereIll 19 yearsEffect faded forums.phoenixrising.me Apr 2015

  Nineteen years after a suspected tick bite left her unable to walk more than 10-20 minutes, a UK woman in her late 60s started a modified Cowden herbal protocol (Banderol/Cumanda, Andrographis 4/day, Japanese Knotweed 12/day for about three months, teasel…

• Clindamycin is a miracle drug for my CFS/ME/POTS/Fibromyalgia symptoms

  Substantial ME/CFS Severe forums.phoenixrising.me Mar 2015

  Took clindamycin 300mg three times daily for 10 days on two separate occasions, once for a tooth infection and once for a throat infection. Reported it helped "tremendously with ALL of my diagnoses" (CFS, POTS, fibromyalgia and others), to the point of not…

• Thirteen years after occupational exposure - Doug is well

  Full recovery ME/CFS ModerateIll 13 yearsEffect faded healthrising.org Feb 2015

  Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…

• Is Lyme Disease Curable? Katina Makris' Story

  Substantial ME/CFS SevereIll 10 years cfsunravelled.com · sells Nov 2014

  Credits CBT or psychological work and mentor mindset. Katina was ill 10y with severe ME/CFS and reports a substantial improvement. Chronic Lyme plus fibromyalgia; mindset shift.

• what has worked for you

  Substantial ME/CFS Very severe forums.phoenixrising.me Oct 2014

  Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but…

• GcMAF spray and bravo yogurt

  Substantial ME/CFS forums.phoenixrising.me Oct 2014

  Used MAF314 (later marketed as Bravo) probiotic yoghurt for about a year, alongside concurrent Lyme treatment. At 6 months Nagalase fell from 3.9 to 2.9 and he felt better; by 12 months he felt "much better." He separately tried a GcMAF spray for 2 months…

• A Proven Treatment-Cure for Chronic Epstein Barr Virus

  Near-full ME/CFS SevereIll 19 years forums.phoenixrising.me Aug 2014

  After 19 years of illness including multiple chronic infections, Abdulrahman self-designed an antibiotic course for mycoplasma followed by a supplement-heavy antiviral protocol for EBV, and reports being "95% cured for 2.5 years," functioning better than the…

• Feeling amazing after getting out of Mold/Mycotoxin home

  Substantial ME/CFS Severe forums.phoenixrising.me Jul 2014

  After moving out of a mold/mycotoxin-contaminated home and combining methylation supplements, antifungals/antibiotics/antiparasitics, a bentonite clay binder and multiple hyperbaric oxygen sessions, she reports "amazing improvements" over the preceding month…

• Seeing some immediate improvement with ARVs

  Substantial ME/CFS Severe forums.phoenixrising.me May 2014

  Started Isentress and Truvada after years of antibiotics for comorbid Lyme disease and ME/CFS (also XMRV-positive) had only kept him from "disability." Reports "immediate improvement" and, hedging with "if I had to guess," attributes "85% of my improvement"…

• One year follow-up valcyte, colchicine, and doxycycline

  Substantial ME/CFS SevereIll 11 years forums.phoenixrising.me Jan 2014

  After 11 years of illness severe enough to force retirement from his healthcare career and keep him in bed roughly half the time, he took Valcyte titrated from 225mg to 900mg/day over 2.5 months plus colchicine 9mg/day, then added doxycycline 100mg twice…

• Has anyone on this site cured him or herself of CFS/ME? Did I?

  Substantial ME/CFS SevereIll 2 yearsEffect faded forums.phoenixrising.me Oct 2013

  Used a mix of doxycycline (which finally knocked out a persistent fever), roughly 20 doses of dexamethasone borrowed from a friend (temporary but "phenomenal" relief), Isocort, daily hydrocortisone gel, raw herbal teas, green powders, methylation support,…

• Anyone have any success with GAPS?

  Partial ME/CFS Ill 12 years forums.phoenixrising.me Jul 2013

  After 12 years of CFS/Lyme, he combined GAPS with bone broth, high-dose probiotics, yogurt, kefir, coconut oil, glutamine and cod liver oil, reporting "significant improvement" after just one week. He cautions that one week is "too early to claim a…

• Anyone have any success with GAPS?

  Relapsed ME/CFS Ill 12 yearsEffect faded forums.phoenixrising.me Jul 2013

  After 12 years of CFS, six months on the GAPS diet "definitely lifted" his general health and "improved my cognition greatly," to the point he could take up artistic pursuits again. Starting Lyme antibiotics about six months after beginning GAPS "set him…

• Improving with ABX, finally?

  Partial ME/CFS SevereIll 9 years forums.phoenixrising.me Jun 2013

  After 9 years of illness with significant fatigue and brain fog, an antibiotic protocol (drugs/doses not specified in this post) produced about 4 months of a severe Herxheimer-type reaction before it passed. In the following roughly 10 days he gained 5kg up…

• Feeling generally better

  Substantial ME/CFS Very severeIll 30 years forums.phoenixrising.me May 2013

  Thirty years after a mono-triggered onset that left her housebound, unable to drive or cook, with severe vertigo and depression, she layered years of high-dose Famvir and Acyclovir and about two years of Mycoplasma antibiotics with, more recently, roughly…

• Starting to see moderate success on Valcyte against CMV

  Partial ME/CFS SevereIll 4 years forums.phoenixrising.me Mar 2013

  Four years into illness, after 3.5 years of antibiotics and antimalarials for Lyme and co-infections (Bartonella, Chlamydia pneumoniae, Mycoplasma pneumoniae, Babesia) stopped helping, switched to Valcyte 2 tablets daily. After three months her CMV…

• Better Health Guy: My Story

  Substantial ME/CFS SevereIll 30 yearsEffect faded betterhealthguy.com 2013

  This page does not name any specific drugs, doses, procedures, or protocols Scott Forsgren used, stating only that he worked with doctors and other practitioners over the years. He describes his chronic illness as lasting nearly thirty years, with a…

• Test results and antivirals success, what are high titers, what tests?

  Substantial ME/CFS Moderate forums.phoenixrising.me Oct 2012

  After one month of doxycycline for Lyme disease, reported feeling "enormously better," summing up the change simply as being "off the couch and cooking again." Posted as an aside in a thread otherwise focused on antiviral titers and testing, with dosing…

• Did KDM's treatment help you or did you get worse?

  Partial ME/CFS forums.phoenixrising.me Jul 2012

  Treating co-infections including Borrelia and Bartonella with a trial-and-error mix of MAF314, antibiotics, biofilm-reducing enzymes, amalgam removal and chelation, he reports "MAF314 has been working well for me," a partial ongoing improvement achieved only…

• Did KDM's treatment help you or did you get worse?

  Partial ME/CFS forums.phoenixrising.me Jul 2012

  Recently starting a KDM regimen of GcMAF, "4ME," lactoferrin, antibiotics, probiotics and B12, she reports "have seen an improvement" early in the course, though her disease "fluctuates a bit" and she remains financially dependent on family to continue.

• Did KDM's treatment help you or did you get worse?

  No benefit ME/CFS forums.phoenixrising.me Jul 2012

  Treating Lyme, Bartonella, Babesia and EBV, she reports her body "reacts terribly" to GcMAF, with worsening reactions across multiple injections that came "close to ER trips." She stopped GcMAF on her new practitioner's advice in favor of antibiotics and IV…

• Did KDM's treatment help you or did you get worse?

  Relapsed ME/CFS SevereIll 1.5 yearsEffect faded forums.phoenixrising.me Jun 2012

  Under KDM's care for 18 months, six months of rigorous GcMAF use brought "a lot of improvement," but stopping for six months for family reasons was followed by a Lyme diagnosis that KDM was reportedly "almost excited" to find because it explained the case.…

• Anyone improve from bed/housebound to high level of functionality?

  Relapsed ME/CFS Very severeIll 1 yearEffect faded forums.phoenixrising.me Jan 2012

  After a year completely bedridden in what she calls a "strange comatose condition" - unable to chew or speak, washed by family - she took megadoses of magnesium, zinc and vitamin C while resting in bed doing nothing, and rose to about level 8 functioning.…

• Successfull GcMAF Therapy

  Substantial ME/CFS Severe forums.phoenixrising.me · sells Sep 2011

  Reports 5 months of GcMAF (2 months on a Lyme protocol, then 3 months for XMRV) let him come off supplemental oxygen and Lyme medications, wake near noon instead of 4-6pm, cook meals, take short walks and speak/converse better. He identifies himself in the…

• Migraine medicine made me feel slightly better next day

  Relapsed ME/CFS Effect faded forums.phoenixrising.me May 2011

  Took minocycline daily for 6 months and says it cut his migraines by about 90%, a substantial and clearly attributed effect. He had stopped it 4 months before this post and reports the benefit had faded since stopping, and is unsure it's safe to resume…

• My experience on Famvir

  Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me Jan 2011

  Relapsed with CFS in October 2010 after three months of stress, then started Famvir 250mg twice daily (briefly upped to 500mg twice daily for 5-7 days) combined with Cycloferon; within two to three weeks felt "substantially better," with milder headaches and…

• Please Tell Me Your Valtrex + Valcyte Story

  Partial ME/CFS Severe forums.phoenixrising.me Nov 2010

  In Ohio, combined Valcyte, Valtrex and doxycycline (the last for a mycoplasma co-infection) and after about five months said she was "not sorry" she had done the treatment. Where she previously "could do nothing and felt sick all of the time," she gained…

• What Treatments Have Cured People?

  Substantial ME/CFS SevereIll 11 years forums.phoenixrising.me Sep 2010

  Doug, misdiagnosed for 7 of his 11 sick years before Chlamydia pneumoniae and EBV were identified, took inosine alone for a couple of short stretches with limited effect, then added DMAE about 1.5 years before posting; he described the fog lifting and…

• What treatments HAVE ACTUALLY helped?

  Substantial ME/CFS forums.phoenixrising.me Jul 2010

  Combined a large stack of B12 injections, CoQ10, Fibroenergy, amino acids, SAMe, magnesium, prescription vitamin D, Synthroid, three years of low-dose Minocin, three months of antivirals, and a gluten-free diet, without singling out one component as key. Now…

• Tagamet (cimetidine) for CFIDS (worked for me)

  Near-full ME/CFS SevereEffect faded forums.phoenixrising.me Jan 2010

  After a severe four-month relapse with fevers, shingles and swollen glands, faith.hope.love reports being "90% recovered" on cimetidine about a month into treatment, functional enough to return to work, with her recurrent shingles not returning and the other…

• Do CFS Patients Ever Get TRULY Well?

  Near-full ME/CFS SevereIll 12 years forums.phoenixrising.me Oct 2009

  Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with…

• What GcMAF dose?

  Partial ME/CFS forums.phoenixrising.me

  As a patient of Dr De Meirleir, took weekly injectable GcMAF at 50ng in 2012, which she says "normalized my Nagalase and...improved my general condition," alongside separate antibiotic/herbal treatment for Borrelia and Bartonella co-infections between 2012…

• How Dr. Cat found her freedom from Severe CFS and Lyme

  Full recovery ME/CFS Severe healwithliz.com · sells

  Credits brain retraining. Cat had severe ME/CFS and is described as fully recovered. Comorbid Lyme; is herself a doctor.

• Mika's full recovery from CFS, Lyme, Severe MCS

  Full recovery ME/CFS Severe healwithliz.com · sells

  Credits brain retraining. Mika had severe ME/CFS and is described as fully recovered. Comorbid Lyme, MCS, MCAS.

• Primal Trust testimonials: Alyssa Shifre

  Partial Long COVID Ill 3 years primaltrust.org · sells

  Credits brain retraining. Alyssa was ill 3y with long COVID and reports a partial improvement. POTS, Lyme, Long COVID and MCAS combination.

• Primal Trust testimonials: Lainie Glenn

  Partial ME/CFS primaltrust.org · sells

  Credits brain retraining. Lainie had ME/CFS and reports a partial improvement. Lyme, mold, CFS and TBI; 30-60% functionality under 2 months.

• Primal Trust testimonials: Tess Leander

  Full recovery ME/CFS primaltrust.org · sells

  Credits brain retraining. Tess had ME/CFS and is described as fully recovered. CFS, mold and Lyme; claims totally symptom-free.

• Primal Trust testimonials: Carrie Martin

  Substantial ME/CFS SevereIll 7 years primaltrust.org · sells

  Credits brain retraining. Carrie was ill 7y with severe ME/CFS and reports a substantial improvement. CFS from Lyme; returning to work and socialising.

• Cedar Brown's Story

  Full recovery ME/CFS SevereIll 5 years the-recovery-hub.org · sells

  She recovered from ME/CFS, alongside POTS, mold illness, IBS and anxiety, using a combination of Low Dose Naltrexone (LDN), the Edison Effect Program by Anj Garneri, Trauma Healing Accelerated and somatics work, pacing, IFS parts work and mold remediation,…