How it went
Did it last?
- 7 of 46 said the benefit wore off (including the 4 who relapsed).
- 4 of 46 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 11 | 24% |
| Near-full | 1 | 2% |
| Substantial | 12 | 26% |
| Partial | 16 | 35% |
| Relapsed | 4 | 9% |
| No benefit | 2 | 4% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 3 | 0% | |
| Severe | 19 | 37% | |
| Very severe | 10 | 30% |
14 accounts don’t say how ill the person was.
Who published these accounts
33% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
How often it comes up
Posts that mention Lyme / co-infection protocols, per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 0 | 184 | 0.0 |
| 2010 | 2 | 682 | 2.9 |
| 2011 | 0 | 704 | 0.0 |
| 2012 | 0 | 1,491 | 0.0 |
| 2013 | 2 | 1,708 | 1.2 |
| 2014 | 2 | 2,352 | 0.9 |
| 2015 | 8 | 2,158 | 3.7 |
| 2016 | 0 | 1,431 | 0.0 |
| 2017 | 3 | 3,110 | 1.0 |
| 2018 | 3 | 2,201 | 1.4 |
| 2019 | 7 | 1,075 | 6.5 |
| 2020 | 0 | 2,581 | 0.0 |
| 2021 | 1 | 1,867 | 0.5 |
| 2022 | 4 | 1,166 | 3.4 |
| 2023 | 2 | 1,000 | 2.0 |
| 2024 | 0 | 1,237 | 0.0 |
| 2025 | 0 | 1,019 | 0.0 |
| 2026 (so far) | 0 | 840 | 0.0 |
Posts in the forum threads we archived, 26,806 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These threads all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
All 46 accounts
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Martin's Paradoxical Temporary ME/CFS Remission Story
Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone…
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The Healing Dudes: Getting out of Long Covid and Chronic Lyme together
Credits nervous system, meditation and community. Joe was ill 4-5yr Lyme then LC relapse with long COVID and reports a partial improvement. Relapsed into long covid after Lyme recovery.
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The Healing Dudes: Getting out of Long Covid and Chronic Lyme together
Credits nervous system, meditation and community. Josh was ill 17 years with severe long COVID and reports a partial improvement. Chronic Lyme primary; "incredible progress," not cure.
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Recovery stories: parasites cleanse
In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…
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Does anyone with CFS get back to 100% ever?
uglevod's treatment was the Marshall Protocol (MP, per mpkb.org), an antibiotic-based regimen; the post doesn't give specific drugs or doses, only that it was "brutal," especially in the first 1.5 years, with blood work resembling "mild chemo." The post…
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List of ME/CFS Recovery and Improvement Stories
Received FMT (fecal microbiota transplant) treatment at the Taymount Clinic for a severe, chronic-Lyme-linked ME/CFS-like illness; this page gives no session count, dosing, or other protocol detail. It describes a three-level gain and a full recovery…
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Getting Results, increased activity
Returning years after his 2014 ARV thread, describes a newer multi-drug stack - disulfiram (Antabuse) escalated from 125mg to 250mg twice weekly over four months with alpha lipoic acid the following morning, plus clarithromycin/rifampin/minocycline for…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Credits diet, chiropractic and IV therapy. Kiki was ill 10y with severe ME/CFS and is described as fully recovered. Jugular venoplasty surgery plus NUCCA chiropractic.
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Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS
Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…
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Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT
Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…
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Did finding an infection via Armin Labs have a positive influence on your treatment & recovery
Antibiotics for Borrelia found via Armin Labs testing gave her relief from "the unrelenting horror of Lyme disease pain and malaise," but she reports the years of undiagnosed infection left lasting autoimmune-type sequelae -- severe POTS, muscle weakness,…
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This illness will last for a long time. And why is that? Because I am already prepared to die – inside
Attended a one-on-one Lightning Process course over four days (22-25 April 2014) in Kings Langley, Hertfordshire, England, with trainer Heather Thomas, after her mother had already tried acupuncture, natural pills, syrups, oils, restricted diets and herbs…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Choose the order: Oximatrine, Olmesartan, Famciclovir, Inosine Pranobex and Cycloferon.
Olmesartan, an angiotensin receptor blocker taken as part of a Marshall Protocol approach; he does not give his own exact dose, though he notes a severe ME/CFS patient he knew benefited on as little as 20mg daily within a few months. He reports the drug…
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Tenofovir (Viread) / Raltegravir (Isentress) Cures ME/CFS Patient Sick for 20 Yrs + Tenofovir Poll
Took tenofovir and raltegravir continuously for four years for ME/CFS that began after a measles/rubella/polio booster as a teenager, with extensive testing having ruled out Lyme disease. Quoted directly as saying "After 20 years of ME I am now cured. My 4th…
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Need to delete this. [Deleted]
Was diagnosed with ME/CFS first, then four years later diagnosed with Lyme disease and treated with a combination of pharmaceutical and herbal antibiotics under a Lyme specialist, and separately started cholestyramine with EPA/DHA fish oil after also…
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Need to delete this. [Deleted]
Treated a combination of CIRS/mold illness, Lyme, Babesia and antibiotic-resistant MARCONS sinus infection with doxycycline plus Diflucan, then a rotating four-times-daily binder regimen (Takesumi charcoal, diatomaceous earth, zeoBind, citrus pectin), a BEG…
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"Death Rider": A (Hopeful) Mold Illness Story
After moving into a moldy house around 2011, former endurance cyclist Chris Graber declined over several years into a wheelchair- and oxygen-dependent state with a central IV line, initially misdiagnosed as Lyme disease. Once Dr. Ritchie Shoemaker identified…
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In remission following Ayurvedic treatment
Traveled to Kerala, India for 18 days of Ayurvedic treatment, including detox procedures, nasyam and shirodhara, after 6 years of CFS/ME with symptoms ranging from very severe to mild on the Canadian criteria scale, having already tried the Marshall…
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Long Treatment Regimen Reaps Dividends for Irene
Irene, a college teacher, developed severe ME/CFS with active EBV and HHV-6 infections after 2001, with extreme fatigue, migraines, joint pain and memory loss. Over more than a decade she combined Valtrex and Valcyte, Babesia treatment, atenolol, complete…
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The Master Cleanse
Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…
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Success treating multiple infections with Chlorine Dioxide
Followed Kerri Rivera's MMS (chlorine dioxide) protocol for 4.5 months, combined with a raw vegan diet and daily castor oil packs, for CFS/ME diagnosed 15 years earlier and later found to involve Lyme, bartonella, babesia, EBV, mycoplasma and mold. Had been…
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Is Lyme Disease Curable? Katina Makris' Story
Credits CBT or psychological work and mentor mindset. Katina was ill 10y with severe ME/CFS and reports a substantial improvement. Chronic Lyme plus fibromyalgia; mindset shift.
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what has worked for you
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but…
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GcMAF spray and bravo yogurt
Used MAF314 (later marketed as Bravo) probiotic yoghurt for about a year, alongside concurrent Lyme treatment. At 6 months Nagalase fell from 3.9 to 2.9 and he felt better; by 12 months he felt "much better." He separately tried a GcMAF spray for 2 months…
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Seeing some immediate improvement with ARVs
Started Isentress and Truvada after years of antibiotics for comorbid Lyme disease and ME/CFS (also XMRV-positive) had only kept him from "disability." Reports "immediate improvement" and, hedging with "if I had to guess," attributes "85% of my improvement"…
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Lyme Literacy: A 'Chronic Fatigue Syndrome Chronicle' Pt. VI
Sulfamethoxazole/trimethoprim (Bactrim) was one of several antibiotics she received intravenously, alongside Doxycycline and Azithromycin, under a Lyme-literate physician's care. She had been severely debilitated by chronic fatigue syndrome for about…
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Anyone have any success with GAPS?
After 12 years of CFS/Lyme, he combined GAPS with bone broth, high-dose probiotics, yogurt, kefir, coconut oil, glutamine and cod liver oil, reporting "significant improvement" after just one week. He cautions that one week is "too early to claim a…
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Anyone have any success with GAPS?
After 12 years of CFS, six months on the GAPS diet "definitely lifted" his general health and "improved my cognition greatly," to the point he could take up artistic pursuits again. Starting Lyme antibiotics about six months after beginning GAPS "set him…
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Starting to see moderate success on Valcyte against CMV
Four years into illness, after 3.5 years of antibiotics and antimalarials for Lyme and co-infections (Bartonella, Chlamydia pneumoniae, Mycoplasma pneumoniae, Babesia) stopped helping, switched to Valcyte 2 tablets daily. After three months her CMV…
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Better Health Guy: My Story
This page does not name any specific drugs, doses, procedures, or protocols Scott Forsgren used, stating only that he worked with doctors and other practitioners over the years. He describes his chronic illness as lasting nearly thirty years, with a…
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Test results and antivirals success, what are high titers, what tests?
After one month of doxycycline for Lyme disease, reported feeling "enormously better," summing up the change simply as being "off the couch and cooking again." Posted as an aside in a thread otherwise focused on antiviral titers and testing, with dosing…
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Did KDM's treatment help you or did you get worse?
Treating co-infections including Borrelia and Bartonella with a trial-and-error mix of MAF314, antibiotics, biofilm-reducing enzymes, amalgam removal and chelation, he reports "MAF314 has been working well for me," a partial ongoing improvement achieved only…
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Did KDM's treatment help you or did you get worse?
Treating Lyme, Bartonella, Babesia and EBV, she reports her body "reacts terribly" to GcMAF, with worsening reactions across multiple injections that came "close to ER trips." She stopped GcMAF on her new practitioner's advice in favor of antibiotics and IV…
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Did KDM's treatment help you or did you get worse?
Under KDM's care for 18 months, six months of rigorous GcMAF use brought "a lot of improvement," but stopping for six months for family reasons was followed by a Lyme diagnosis that KDM was reportedly "almost excited" to find because it explained the case.…
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Anyone improve from bed/housebound to high level of functionality?
After a year completely bedridden in what she calls a "strange comatose condition" - unable to chew or speak, washed by family - she took megadoses of magnesium, zinc and vitamin C while resting in bed doing nothing, and rose to about level 8 functioning.…
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Successfull GcMAF Therapy
Reports 5 months of GcMAF (2 months on a Lyme protocol, then 3 months for XMRV) let him come off supplemental oxygen and Lyme medications, wake near noon instead of 4-6pm, cook meals, take short walks and speak/converse better. He identifies himself in the…
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Do CFS Patients Ever Get TRULY Well?
Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with…
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What GcMAF dose?
As a patient of Dr De Meirleir, took weekly injectable GcMAF at 50ng in 2012, which she says "normalized my Nagalase and...improved my general condition," alongside separate antibiotic/herbal treatment for Borrelia and Bartonella co-infections between 2012…
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How Dr. Cat found her freedom from Severe CFS and Lyme
Credits brain retraining. Cat had severe ME/CFS and is described as fully recovered. Comorbid Lyme; is herself a doctor.
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Mika's full recovery from CFS, Lyme, Severe MCS
Credits brain retraining. Mika had severe ME/CFS and is described as fully recovered. Comorbid Lyme, MCS, MCAS.
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Primal Trust testimonials: Alyssa Shifre
Credits brain retraining. Alyssa was ill 3y with long COVID and reports a partial improvement. POTS, Lyme, Long COVID and MCAS combination.
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Primal Trust testimonials: Lainie Glenn
Credits brain retraining. Lainie had ME/CFS and reports a partial improvement. Lyme, mold, CFS and TBI; 30-60% functionality under 2 months.
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Primal Trust testimonials: Tess Leander
Credits brain retraining. Tess had ME/CFS and is described as fully recovered. CFS, mold and Lyme; claims totally symptom-free.
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Primal Trust testimonials: Carrie Martin
Credits brain retraining. Carrie was ill 7y with severe ME/CFS and reports a substantial improvement. CFS from Lyme; returning to work and socialising.