ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS on daily clonazepam for six years, with bloating and reflux
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
Summary
They had taken clonazepam daily for six years, starting at 0.5 mg twice daily and now at 1 mg twice daily. Tolerance had developed, but the drug still dampened sensory input, the only reason they had not tapered. Bloating and reflux began around year two and never went away, eased somewhat by small meals and occasional famotidine.
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What they tried
Their words about each treatment
- clonazepam · Helped
Been on clonazepam daily for six years now. Tolerance is real but I still get some relief from the sensory dampening, which is the only reason I haven't tapered yet.
In context ↗ - small meals · Helped
GI issues are mainly bloating and reflux, small meals and occasional famotidine help take the edge off.
In context ↗ - famotidine · Helped
small meals and occasional famotidine help take the edge off
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| year two of clonazepam | GI issues began and never resolvedGI issues started around year two and never really went awayIn context ↗ |
| 2026-07-13 | still on daily clonazepam after six years; tolerance but some reliefBeen on clonazepam daily for six years now. Tolerance is real but I still get some relief from the sensory dampeningIn context ↗ |
Adverse events
- Clonazepam (Klonopin)“GI issues started around year two and never really went away.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
GI issues started around year two and never really went away ... GI issues are mainly bloating and reflux
- Light & noise sensitivity
I still get some relief from the sensory dampening
In context ↗