ME/CFS
Outcome unclear
With ME/CFS, found clinic pacing sessions not particularly useful and stopped going
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jan 2018
In their words
- Condition: ME/CFS
I went to this clinic, but a long time ago (mid-2000s)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They attended a clinic in the mid-2000s, where sessions covered pacing, priorities, task management, complete rest and sleep hygiene. They found it not particularly useful beyond talking to others with the same illness, and gave up after some months because the long, expensive taxi journey was not worth it. The small palliative care unit in Wareham caused less sensory overload than a main hospital.
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What they tried
Also tried
Their words about each treatment
- pacing · No change
It was mostly about pacing, priorities, task management, delegation, importance of complete rest, "sleep hygiene" etc.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
The tiny palliative care unit in Wareham was definitely less sensory overload than a main hospital
In context ↗