ME/CFS
Severe → no benefit
ME/CFS with severe post-exertional malaise; still too ill to risk treatment trip
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I have a severe PEM and ME/CFS.
In context ↗ - At worst: Severe
I have a severe PEM and ME/CFS. I recently took a 4-hour road trip and crashed afterwards, I couldn't walk or eat for a few days.
In context ↗ - Now: No benefit
I have a severe PEM and ME/CFS. ... I couldn't walk or eat for a few days.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They describe ME/CFS with severe post-exertional malaise; a recent four-hour road trip left them crashed and unable to walk or eat for a few days. In December 2025 they were weighing travel for a treatment they had heard costs around $2k a session, but judged the trip too risky given how ill they are.
Ask Miruvor AI
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS with severe post-exertional malaiseI have a severe PEM and ME/CFS.In context ↗ | Not stated |
| recently, before December 2025 | crashed after a 4-hour road tripI recently took a 4-hour road trip and crashed afterwards, I couldn't walk or eat for a few daysIn context ↗ | Severe |
| 2025-12-17 | still severely affected; weighing travel for a treatment | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have a severe PEM and ME/CFS.
In context ↗