ME/CFS
Outcome unclear
Years of ME/CFS-like symptoms, fibromyalgia diagnosis, LDN and less social media
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’m on this sub a while before I got the diagnosis because symptoms are very similar. I take LDN and it has worked really well for me especially for the fatigue and PEM.
In context ↗
Summary
After years of being told it was all in their head, they were diagnosed with fibromyalgia by Dr Rizwan, having spent time in ME/CFS spaces because their symptoms were very similar. They take LDN, which they say has worked really well, especially for fatigue and post-exertional malaise. In October 2026 they cut their social media use, hoping it would ease their overstimulated nervous system; no outcome was given.
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What they tried
Also tried
LDN· Helped a lotreducing social media / screen time· Not said
Their words about each treatment
- LDN · Helped a lot
I take LDN and it has worked really well for me especially for the fatigue and PEM.
In context ↗ - reducing social media / screen time · Not said
I know for a fact I feel better when my screen time is less ... Honestly, I'd try anything to help myself so I'm hoping this works.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | became ill; symptoms similar to ME/CFSthat was even before I got sickIn context ↗ | |
| 2026-08-25 | LDN helped fatigue and PEMI take LDN and it has worked really well for me especially for the fatigue and PEM.In context ↗ | Low-dose naltrexone |
| 2026-10-16 | cut social media to reduce overstimulationI have deactivated instagram & Facebook, and deleted the rest of the apps.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
it has worked really well for me especially for the fatigue and PEM
In context ↗