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ME/CFS Outcome unclear

Largely bedbound with ME/CFS, tried moving necessities into the bedroom and opening windows

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Apr 2026
In their words
  • Condition: ME/CFSreddit.com/r/chronicfatigue In context ↗
  • At worst: SevereI use my wheelchair to get to the restroom, which is only a few feet away, then back to bed. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

They described being chronically fatigued and largely bedbound, using a wheelchair to reach the restroom a few feet away and unsure whether they could get back up the stairs at any moment. After moving necessities into their bedroom and opening windows for fresh air, they believed the number of good days had increased, with time with family spent bedside or downstairs in the living room.

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What they tried

Also tried

moving all necessities to my bedroom· Helpedwheelchair· Not said
Their words about each treatment
  • moving all necessities to my bedroom · HelpedI really believe it’s made a difference in the number of good days I have to spend time with family and friends In context ↗
  • wheelchair · Not saidI use my wheelchair to get to the restroom, which is only a few feet away, then back to bed. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—largely bedbound, wheelchair used indoors to reach the restroomI use my wheelchair to get to the restroom, which is only a few feet away, then back to bed. In context ↗Severe
2026-04-11moved necessities into the bedroom; more good days with familyI really believe it’s made a difference in the number of good days I have to spend time with family and friends In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessquestionable whether I’ll be able to get back up the stairs at any given moment In context ↗

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