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ME/CFS Moderate → no benefit

ME/CFS with too little energy to work, ongoing symptoms and no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2022
In their words
  • Condition: ME/CFSI myself am in a similar (albeit not as extreme situation) In context ↗
  • At worst: Moderateexercise and exertion make my symptoms worse, I tried to attend college even at part time pace but my health got worse In context ↗
  • Now: No benefitI do not have the energy to do much during the day In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Nightjar 18901 lived in a suburban, somewhat rural part of California and could not work because of a chronic illness, with too little energy to do much during the day and symptoms made worse by exercise and exertion. A part-time college attempt had worsened their health, and they were pursuing SSI disability benefits, still waiting for a court date. In their September 2022 post they described ongoing symptoms.

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What they tried

Also tried

Their words about each treatment
  • exercise · WorseI have found that exercise worsens symptoms. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—chronically ill with CFS and unable to workI myself am in a similar (albeit not as extreme situation) In context ↗Not stated
—health got worse after attempting college part-timeI tried to attend college even at part time pace but my health got worse In context ↗Not stated
2022-09-17still ill, low energy, awaiting SSI court dateI do not have the energy to do much during the day, exercise and exertion make my symptoms worse In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseexercise and exertion make my symptoms worse In context ↗

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