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ME/CFS Severe → somewhat better

More severe ME/CFS with much time in bed, now somewhat better, credits bedside drawers

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Aug 2026
In their words
  • Condition: ME/CFSI'm moderate-severe too and was previously more severe. In context ↗
  • At worst: SevereI'm moderate-severe too and was previously more severe. In context ↗
  • Now: Somewhat betterI'm moderate-severe too and was previously more severe. In context ↗
Read from 3 of their posts and comments; links to the one this page draws on

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Summary

Posting in an ME/CFS forum in 2025 and 2026, this person called themselves moderate-severe, previously more severe, and said they spend so much time in bed that using IKEA Alex drawers or a small dresser as a bedside table changed their life and not having to get out of bed for essentials was a game changer. They use a refurbished pair of QC35II headphones, replacing the ear pads every ~1.5 years with an off-brand soft mesh type for $15-20. No onset, treatment or overall recovery is described.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—more severely affected than nowI'm moderate-severe too and was previously more severe. In context ↗Severe
2026-08-08improved to moderate-severeModerate

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