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ME/CFS Somewhat better

ME/CFS, somewhat better after mast cell stabilisers and antihistamines

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Aug 2023
In their words
  • Condition: ME/CFSI've had CFS for years In context ↗
  • Now: Somewhat betterI've had a lot of improvement from taking Sodium Chromoglycate, DAO, Ketotifen and Zyrtec. In context ↗
Read from 9 of their posts and comments; links to the 8 this page draws on

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Summary

Mesa 37453 reported a lot of improvement in 2018 from mast cell stabilisers and antihistamines, crediting sodium cromoglycate, ketotifen, Zyrtec, DAO and a restricted diet. By 2023 they still had CFS; magnesium citrate was the only magnesium that helped. Molybdenum significantly reduced something they used to struggle with, Equilibrium made no difference and bicarbonate was unclear.

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What they tried

Also tried

Their words about each treatment
  • Sodium Chromoglycate · HelpedI've had a lot of improvement from taking Sodium Chromoglycate, DAO, Ketotifen and Zyrtec. In context ↗
  • restricted diet/exposure to chemicals · HelpedSodium Chromoglycate, Zyrtec, Ketotifen, restricted diet/exposure to chemicals, tonnes of magnesium, DOA + others. In context ↗
  • mag citrate · HelpedI've had CFS for years, and the only one that really helps me is mag citrate. In context ↗
  • bicarb · Not saidI drink a bit of bicarb each day - not sure if it helps or not. In context ↗
  • Molybdenum tablets · HelpedI used to really struggle with this too. Molybdenum tablets with each meal reduced it significantly. In context ↗
  • Equilibrium · No changeI tried Equilibrium and it made no difference, good or bad. In context ↗

Approaches: H1 antihistamines · Antihistamines & MCAS · Diet · Supplements

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsethad CFS for yearsI've had CFS for years In context ↗
2018-03-15most promising improvement from mast cell stabilisers and antihistaminestreatment with mast cell stabilizing drugs and antihistamines has been my most promising intervention so far In context ↗
2023-08-01still had CFS; magnesium citrate the only magnesium that helpedthe only one that really helps me is mag citrate In context ↗

Symptoms mentioned

Their words about their symptoms
  • Mast cell (MCAS) & allergiesresponding well to mast cell treatments In context ↗

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