ME/CFS
No benefitIll for 40 years
ME/CFS for forty years with vertigo, still has ME after betahistine and BPPV videos
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 40 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I've got ME. Vaccines do not make it worse
In context ↗ - Now: No benefit
I've had 7 COVID vaccinations and have had ME for forty years.
In context ↗ - Began after: another virus
It was one was my first symptoms when I contracted CFS after measles.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Cedar 46283 has had ME for forty years, with vertigo as one of the first symptoms after contracting CFS following measles. Betahistine helped the vertigo a bit for years, and discovering BPPV on YouTube virtually cured it in about half an hour. They still have ME. They have had seven COVID vaccinations and say vaccines do not make ME worse.
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What they tried
Also tried
BPPV manoeuvre from YouTube· Helped a lotBetahistine· HelpedCOVID vaccinations· No changetreating chronic sinus infection· Not said
Their words about each treatment
- Betahistine · Helped
Betahistine helped a bit for years.
In context ↗ - BPPV manoeuvre from YouTube · Helped a lot
I looked 🔛 YouTube and discovered BPPV, and was virtually cured of vertigo in about half an hour
In context ↗ - treating chronic sinus infection · Not said
No, tried that as an annoying triviality compared to ME.
In context ↗ - COVID vaccinations · No change
I've got ME. Vaccines do not make it worse
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | contracted CFS after measlesIt was one was my first symptoms when I contracted CFS after measles.In context ↗ |
| — | vertigo virtually cured after learning BPPV repositioning on YouTubeThen I looked 🔛 YouTube and discovered BPPV, and was virtually cured of vertigo in about half an hour.In context ↗ |
| 2026-10-26 | still has ME after forty yearsI've got ME. Vaccines do not make it worseIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
It was one was my first symptoms when I contracted CFS after measles ... was virtually cured of vertigo in about half an hour
In context ↗