ME/CFS
Moderate → somewhat better
ME/CFS, moderate for a while, now somewhat better after cutting work hours and housing help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I think I also have a lot of privilege being mild (though was moderate for a while).
In context ↗ - At worst: Moderate
though was moderate for a while
In context ↗ - Now: Somewhat better
was moderate for a while ... I'm at 15 hours now over 3 days (civil engineer)
Summary
A civil engineer with ME/CFS who described themselves as mild, though moderate for a while. After a new 30-hour-a-week job their fatigue worsened over about four months and they judged the hours unsustainable. They cut back to 15 hours over three days to get enough rest to improve, planning to build up very slowly. They credited staying mild largely to their parents being able to house them.
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What they tried
Also tried
Their words about each treatment
- Reducing work hours · Not said
I'm at 15 hours now over 3 days (civil engineer). I took it down to an amount I think would give me adequate rest to improve again.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | moderate ME/CFS for a whilethough was moderate for a whileIn context ↗ | Moderate |
| 2024 | took a 30-hour-a-week job and fatigue worsenedgot a new job at 30 hours for about 4 months, then noticed my fatigue worsen and knew it was unsustainableIn context ↗ | Mild |
| 2024-12 | cut hours to 15 a week over three days, plans to build up very slowlyI'm at 15 hours now over 3 days (civil engineer). I took it down to an amount I think would give me adequate rest to improve again.In context ↗ | Mild |