ME/CFS
Moderate → relapsedIll 30 years before improving or writing
Mild ME/CFS from teens, 10-year remission, then relapsed to moderate
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 30 years
- Last post
- Nov 2022
In their words
- Condition: ME/CFS
after having mild symptoms from my teens (bad enough to disrupt my education)
In context ↗ - At worst: Moderate
until I got sick again (more like moderate)
In context ↗ - Now: Relapsed
I was effectively in remission through 25-35 ... until I got sick again (more like moderate)
In context ↗ - Began after: nothing they could name
after having mild symptoms from my teens
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Had mild symptoms from their teens, bad enough to disrupt their education, then were effectively in remission from about age 25 to 35, well enough to travel and climb mountains. They never identified a reason for the remission. They thought dengue fever likely brought the illness back at a moderate level, and COVID likely did too to a lesser degree. After 30 years they had largely given up hope of recovery.
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What they tried
Also tried
Their words about each treatment
- remission · Helped a lot
I was effectively in remission through 25-35 ... I didn’t change anything obvious that I can think of
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 3 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| teens | mild symptoms began in teens, disrupting educationafter having mild symptoms from my teens (bad enough to disrupt my education)In context ↗ | Mild |
| age 25-35 | about ten years of effective remission, able to travel and climb mountainsI was effectively in remission through 25-35In context ↗ | Near normal |
| age 35 | Dengue fever brought the illness backI’m pretty sure it was Dengue fever that brought me down againIn context ↗ | Moderate |
| — | COVID worsened them to a lesser degreeCovid has too to a lesser degree.In context ↗ | Moderate |
| 2022 | still ill after 30 years, has largely given up hope of recoveryafter 30 years, I pretty much haveIn context ↗ | Moderate |