ME/CFS
Outcome unclear
ME/CFS with bad light sensitivity and bad dreams, tried no contact and ASMR
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jun 2023
In their words
- At worst: Mild
The school covered my fluorescent lights with a blue film - which did help. However, by mid-afternoon, the kids asked for "lights out."
In context ↗
Summary
A Reddit user posting in an ME/CFS forum described light sensitivity bad enough that the fluorescent lights at their school were covered with blue film, and bad dreams eased by nightly podcasts and ASMR videos. They were working at a school in 2021 while ill. In 2023 they said they were better after going no contact on their doctor's and psychologist's orders, after more than forty years of trying.
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What they tried
Also tried
blue film over fluorescent lights· Helpedpodcasts at night· Helpedasmr/reiki on TikTok before bed· Helpedgoing "no contact"· Helpedmusic· No change
Their words about each treatment
- blue film over fluorescent lights · Helped
The school covered my fluorescent lights with a blue film - which did help.
In context ↗ - podcasts at night · Helped
I listen to podcasts every night. It seems to help alleviate bad dreams, etc.
In context ↗ - music · No change
Music doesn't help at all.
In context ↗ - asmr/reiki on TikTok before bed · Helped
I do watch asmr/reiki on TikTok before bed, which also seems to help.
In context ↗ - going "no contact" · Helped
My doctor and psychologist have finally ordered me to go "no contact." ... It's not easy, but I am better.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2021-11-20 | ill and working at a school, where fluorescent lights were covered with blue filmThe school covered my fluorescent lights with a blue film - which did help.In context ↗ | Mild |
| 2023-06-08 | went "no contact" with family on doctor's and psychologist's orders and felt betterIt's not easy, but I am better.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
The school covered my fluorescent lights with a blue film - which did help.
In context ↗ - Sleep problems
I listen to podcasts every night. It seems to help alleviate bad dreams, etc.
In context ↗