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ME/CFS Moderate → no benefit

Constant deterioration with ME/CFS, stopped working, now surviving day by day

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2025
In their words
  • Condition: ME/CFSr/chronicfatigue In context ↗
  • At worst: ModerateHaven’t worked in about 2 and a half years now ... I can at least survive day by day. In context ↗
  • Now: No benefitI can at least survive day by day. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Quail 80690 described constant deterioration until they realised they physically could not live like that and quit working about two and a half years before their post in September 2025. Since quitting they had not worked, missed their job so much, and said they could at least survive day by day.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—constant deterioration until too ill to keep workingI was constantly deteriorating until I realised I physically cannot live like this and had to quit working In context ↗Moderate
2025-09-13stopped working about two and a half years earlier; stable, surviving day by dayHaven’t worked in about 2 and a half years now (I miss it so much) but I can at least survive day by day. In context ↗Moderate

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