Long COVID
Mild → no benefitIll for 5 months
Long COVID with panic-like attacks, weakness and shaking, awaiting specialist
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 months
- Last post
- Apr 2024
In their words
- Condition: Long COVID
I think I'm going to diagnose myself with "Hyper-POTS"
In context ↗ - At worst: Mild
I found it very difficult to work while taking the Clonidine
In context ↗ - Now: No benefit
I've had several doctors suggest that I may have POTS and have an appointment with a POTS specialist later this year
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
In December they collapsed at home with blood pressure 215/110 and were hospitalised several days; all tests were normal. After a couple of good weeks, severe panic-like attacks of agitation, weakness and shaking began, with many ER visits. Clonidine and Ativan helped but Clonidine made them very sleepy and work difficult. They suspect hyper-POTS and await a specialist.
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What they tried
Also tried
Their words about each treatment
- Clonidine · Helped
I made numerous visits to the ER and was prescribed Clonidine and Ativan...which definitely helped, but I found it very difficult to work while taking the Clonidine....as it made me very sleepy.
In context ↗ - Ativan · Helped
I made numerous visits to the ER and was prescribed Clonidine and Ativan...which definitely helped
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| December | Collapsed at home with very high blood pressure; hospitalised several days, all tests normalI felt extremely weak....and couldn't tolerate any kind of movementIn context ↗ |
| a couple of weeks later | Felt fine for a couple of weeksI was fine for a couple of weeksIn context ↗ |
| after that | Severe panic-like attacks of agitation, weakness and shaking; many ER visitsdeveloped severe attacks (panic?) that caused me to feel very agitated, weak, and shakyIn context ↗ |
| 2024-04-17 | Still having attacks; Clonidine and Ativan help but Clonidine makes them very sleepy; awaiting POTS specialistI found it very difficult to work while taking the Clonidine....as it made me very sleepyIn context ↗ |
Adverse events
- Clonidine“I found it very difficult to work while taking the Clonidine....as it made me very sleepy.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I felt as though my blood pressure was dropping and that I was going to faint
In context ↗ - Gut problems
I vomited when they took me to the ambulance
In context ↗ - Light & noise sensitivity
remember feeling overly sensitive to the movement and lights in the ambulance
In context ↗ - Anxiety & low mood
developed severe attacks (panic?) that caused me to feel very agitated
In context ↗ - Muscle weakness
severe attacks (panic?) that caused me to feel very agitated, weak, and shaky
In context ↗