Long COVID
Severe → no benefitIll for 2 years
Long COVID, still housebound and bedbound some days; anti-inflammatories: no improvement
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- Mar 2024
In their words
- Condition: Long COVID
Still had issues which declined and have issues 2 years later.
In context ↗ - At worst: Severe
I now am house bound, bed bound somedays, got a scooter finally which is not a purchase I was hoping to have to make.
In context ↗ - Now: No benefit
I try the various things I can and I'm still ill
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Marsh 39386 fell ill about two years before March 2024, with silent hypoxia, blue lips, a heart rate of 110 and acute pericarditis and vasculitis; a blood gas test showed respiratory acidosis. Anti-inflammatories given for the pericarditis did little in their view, and low-dose naltrexone later produced only a little change. Still ill, they were housebound, bedbound some days and using a scooter.
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What they tried
Also tried
Their words about each treatment
- antiinflammatory · No change
I took the antiinflammatory maybe it would have been worst, have a feeling like it didn't do much even at the time.
In context ↗ - low dose naltrexone · Helped
I am on low dose naltrexone for that to modulate immune supposedly dysfunctional. Maybe a little change.
In context ↗ - Functional doc aka naturopath · Helped
Functional doc aka naturopath or w.e is the one that has helped and willing to try things and describe what's going on
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | silent hypoxia with blue lips, ER visits, heart rate 110, acute pericarditis and vasculitisER a few times, lips had been blue I didn't know. Silent hypoxia.In context ↗ | Not stated |
| 2024-03-11 | housebound, bedbound some days, using a scooterI now am house bound, bed bound somedays, got a scooter finally which is not a purchase I was hoping to have to make.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
even with dx of POTS it's not accepted by others
In context ↗