ME/CFS
Moderate → no benefitIll for 16 years
ME/CFS since teens, still unable to work even part time after years of pushing past limits
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 16 years
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
I (30F) first became ill when I was 14 and was diagnosed when I was 15.
In context ↗ - At worst: Moderate
I sit here at 30, no longer able to work even part time
In context ↗ - Now: No benefit
I sit here at 30, no longer able to work even part time, wishing I'd been encouraged to listen to my body instead of shamed into pushing past my limits
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Crane 84312 fell ill at 14, was diagnosed at 15 and missed her whole sophomore year of high school before returning for her junior and senior years. At 19 she took a physically demanding blue-collar job in the heat and kept pushing past her limits for nine years. At 30 she can no longer work even part time and wishes she had been encouraged to listen to her body instead of shamed into pushing past her limits.
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What they tried
Their words about each treatment
- pushing past my limits (working a physical job) · Worse
I made the incredible mistake of allowing my family to convince me that my illness was something I could overcome through sheer force of will
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 14 | became ill and missed a full school yearI missed my entire sophomore year of high schoolIn context ↗ | Moderate |
| age 16 | able to return to schoolwas able to go back for my junior and senior yearsIn context ↗ | Mild |
| age 30 | no longer able to work even part timeI sit here at 30, no longer able to work even part timeIn context ↗ | Moderate |