Long COVID POTS: lying down all day at worst, now 90% back to normal after propranolol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
It’s already 2 years…I’m better but I still reach 140
In context ↗ - At worst: Severe
I had to take showers sitting down, I also ate with a horrible tachycardia, like if I was running all the time! I lay down all day.
In context ↗ - Now: Near normal
I’m better but I still reach 140 ... 90% cured
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Crest 83498 described long-haul POTS with heart rates around 130–140 and tachycardia after eating; at worst they lay down all day and showered sitting. They exercised by walking and biking, and took half a propranolol each morning, which they said was working great. By January 2023 they felt better but still reached 140 bpm, and in September 2024 they reported being 90% recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- exercise (walking and biking) · Helped
I’m doing some exercise (walking and biking) ... the symptoms of POTS decrease about 80% for a short period
- propanolol · Helped
Just now I’m trying half propanolol every morning and it’s working great.
In context ↗ - water · Not said
also drink water..to increase blood volume.
In context ↗ - trust on God · Not said
AND Before anything else trust on God! ❤️
In context ↗ - time · Helped a lot
Believe me, it will pass! It takes so long to the symptoms to go away
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 6 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early illness | lay down all day and showered sitting because of tachycardiaI had to take showers sitting down, I also ate with a horrible tachycardia, like if I was running all the time! I lay down all day.In context ↗ | Severe | |
| 2021-07-02 | reported tachycardia after eating but felt better walkingEating usually give me a rapid heart beat (-120), I also feel better walking.In context ↗ | Mild | |
| 2021-07-29 | started half a propranolol each morning and exercisedMe too... 130. I’m doing some exercise (walking and biking) I try to keep it under 140. Just now I’m trying half propanolol every morning and it’s working great.In context ↗ | Mild | Propranolol (Inderal) |
| 2021-07-29 | POTS symptoms fell about 80% after 30 minutes of exercise and 10 minutes restI have a significant improvement after the following fact: (exercising for 30 min - lying down and resting for about 10 min.)In context ↗ | Mild | Everyday exercise and activity |
| 2023-01-12 | felt better but heart rate still reached 140It’s already 2 years…I’m better but I still reach 140In context ↗ | Mild | |
| 2024-09-19 | reported being 90% recovered90% cured, thanks God!In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Weird POTS thing after exercising.
In context ↗ - Heart symptoms & palpitations
Eating usually give me a rapid heart beat (-120), I also feel better walking.
In context ↗
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