ME/CFS
No benefit
Exhausted and fatigued after any activity with ME/CFS and IBD, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
I never questioned being exhausted and fatigued after doing anything until it never went away.
In context ↗ - Now: No benefit
I am not cured on either front!
In context ↗
Summary
Writing in r/cfs, this person describes ME/CFS symptoms alongside IBD and is unsure when their illness began, because IBD symptoms and the side effects of Stelara, which they take, overlap. They describe being exhausted and fatigued after any activity, until it never went away. They have B12 injections for their IBD and said in August 2026 that they were not cured on either front.
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What they tried
Also tried
Their words about each treatment
- Stelara · Worse
the treatment I take (Stelara) causes many side effects
In context ↗ - B12 injections · Not said
I have B12 injections due to having IBD. I am not cured on either front!
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | illness onset, timing unclear because of overlapping IBD symptomsI'm not even sure when or what my symptoms were at the start as I have IBD so there's many overlapping symptomsIn context ↗ |
| 2026-08-31 | still ill, not curedI am not cured on either front!In context ↗ |
Adverse events
- Ustekinumab (Stelara)“the treatment I take (Stelara) causes many side effects” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I never questioned being exhausted and fatigued after doing anything until it never went away.
In context ↗ - Gut problems
I have IBD so there's many overlapping symptoms
In context ↗