Long COVID numbness and twitching, now recovered as symptoms faded with time
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I had the full body muscle twitches and jolts as a part of long COVID.
In context ↗ - At worst: Mild
I can’t type at work without making tons of spelling mistakes. I am also struggling to hold the phone up to my ear.
In context ↗ - Now: Recovered
I have no lingering symptoms anymore.
In context ↗ - Says they never had: POTS & dysautonomia
I didn’t have dizziness
- Says they never had: Tinnitus
I’ve not had tinnitus though.
Read from 35 of their posts and comments; links to the 12 this page draws on
Summary
After COVID in September 2020, he developed long-COVID neurological symptoms in January 2021: numbness, electric-shock jolts and widespread twitching, later with heavy numb limbs and lost dexterity. Escitalopram helped his anxiety slightly; extra-strength Benadryl was the only treatment that calmed the twitching. Symptoms fluctuated, including a severe relapse in mid-2022, then faded with time. By 2025 he had no lingering symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- escitalopram (an antidepressant) · Helped
It helped slightly, but not by much. ... it certainly helped me
- returned to exercise (running approx. 40 miles per week) · No change
I also returned to exercise (I’m running approx. 40 miles per week right now), however, this has not helped things for me yet.
In context ↗ - extra strength Benadryl · Helped a lot
The only thing that has actually dulled my neuropathy significantly is extra strength Benadryl ... worked really well for me
- Ativan · Helped a lot
I took some Ativan yesterday (dental procedure). Every symptom went away. As the Arivan wore off, it all came back.
In context ↗ - time · Helped a lot
The only thing that cured me was time, sorry to say. It did go away eventually though. ... My symptoms took about 1.5 years to disappear.
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2021 | extra-strength Benadryl stopped the twitchingI tried extra strength Benadryl and the twitching went away.In context ↗ | Mild | Diphenhydramine (Benadryl) |
| September 2021 | muscle spasms declined to almost zero with continued antihistaminesmy muscle spasms have now declined to almost zeroIn context ↗ | Near normal | Diphenhydramine (Benadryl) |
| January 2022 | twitching returned stronger than everthey’re back, stronger than everIn context ↗ | Mild | |
| February 2022 | twitching mostly gone; no longer considered himself a long haulerPretty much all gone. ... I guess I no longer consider myself a long hauler.In context ↗ | Near normal | Diphenhydramine (Benadryl) |
| July 2022 | full-body twitches returned worse than evermy full body twitches returned and are worse than everIn context ↗ | Mild | |
| 2022-07-15 | woke unable to move right leg, then heavy numb limbs and lost dexterity; lowest pointI woke up and couldn’t move my right leg ... I’m now at my lowest pointIn context ↗ | Mild | |
| August 2022 | heavy numb limbs and lost dexterity disappeared, though twitching remainedmy symptoms of “heavy” limbs that were feeling numb, as well as the loss of dexterity in my fingers have all now disappearedIn context ↗ | Mild | |
| July 2025 | reported no lingering symptoms and felt totally fineTotally fine now ... I have no lingering symptoms anymore. | Recovered | Time and spontaneous remission |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I woke up and couldn’t move my right leg
In context ↗ - Anxiety & low mood
I got very down about it.
In context ↗
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