Mostly bedridden with ME/CFS, now somewhat better with rest and screen settings
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
As if GET didn’t get me here in the first place.
In context ↗ - At worst: Severe
First time out of bed in a few weeks. The exertion made me throw up. ... I’m exhausted purely from toileting and drinking enough meal replacement shakes.
In context ↗ - Now: Somewhat better
My capacity fluctuates hugely. ... Rest. Just a shite tonne of rest with as little stimulation as possible. It’s the only thing that reliably, gradually helps my baseline
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Beech 70088 has ME/CFS and in April 2026 was mostly bedridden, having been out of bed only once in a few weeks; that bath made them vomit and they blamed graded exercise for getting them there. In June they could look at a screen and post on Reddit again, and their capacity fluctuated hugely. By July they said phone and tablet settings made screens bearable, and that a huge amount of rest with as little stimulation as possible reliably helped their baseline.
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What they tried
What they credit
Also tried
Their words about each treatment
- GET · Much worse
As if GET didn’t get me here in the first place.
In context ↗ - rest · Helped
Just a shite tonne of rest with as little stimulation as possible. It’s the only thing that reliably, gradually helps my baseline
In context ↗ - yawning to flush brain waste · Worse
Ok so I tried this too and got acid reflux
In context ↗ - coloured cellophane · No change
I’ve tried coloured cellophane (LOL) and it doesn’t cut it
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS onset, worsened by graded exerciseAs if GET didn’t get me here in the first place.In context ↗ | Not stated |
| 2026-04-24 | in bed for weeks; a bath, first time out of bed in weeks, made them throw up; exhausted by toileting and shakesI had a bath a few days ago. First time out of bed in a few weeks. The exertion made me throw up.In context ↗ | Severe |
| 2026-06-09 | able to look at a screen and post on Reddit againI’m flying high about being able to Reddit/look at a screen at the moment!!In context ↗ | Severe |
| 2026-07-14 | capacity still fluctuates hugely; tablet settings make screens bearablethe settings on my phone/tablet make things bearable to look atIn context ↗ | Severe |
Adverse events
- Graded exercise therapy (GET)“As if GET didn’t get me here in the first place.” In context ↗ Made symptoms worse
- “Ok so I tried this too and got acid reflux” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
The exertion made me throw up.
In context ↗ - Light & noise sensitivity
I’ve tried coloured cellophane (LOL) and it doesn’t cut it
In context ↗ - Gut problems
Ok so I tried this too and got acid reflux
In context ↗
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