ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS with social contact a PEM trigger; creatine caused agitation
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
even before ME I’ve needed a lot of alone time to recharge.
In context ↗
Summary
A person with ME/CFS who says social contact is one of their most draining, PEM-inducing triggers, and that limiting almost all contact outside their immediate household makes them feel much better. They tried creatine three separate times and each time got extreme agitation and felt worse in general, forcing them to stop. They also have OCD and are AuDHD, and call their protective social boundaries a medical necessity.
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What they tried
Their words about each treatment
- Creatine · Worse
Extreme agitation and feeling worse in general, in a way that is difficult to describe.
In context ↗ - limiting almost all social contact · Helped
I feel much better limiting almost all social contact outside of my immediate household.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | ME/CFS onset; already needed much time aloneeven before ME I’ve needed a lot of alone time to rechargeIn context ↗ |
| 2026-10-26 | felt much better after limiting almost all social contactI feel much better limiting almost all social contact outside of my immediate householdIn context ↗ |
Adverse events
- Creatine“Extreme agitation and feeling worse in general, in a way that is difficult to describe. I’ve tried to take Creatine 3 separate times, and the extreme agitation happened every time, forcing me to stop.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Social contact is one of the most draining, PEM-inducing triggers for me.
In context ↗