Miruvor
Sign up
ME/CFS Somewhat better

Months of dizziness and off-balance with ME/CFS, now somewhat better after vestibular therapy

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
May 2024
In their words
  • Now: Somewhat betterIt didn’t fix everything overnight, but I noticed a big improvement in how I felt. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

The person had months of dizziness and off-balance feelings before a doctor recommended vestibular therapy through SportsMed therapy services, after other treatments did little. The exercises were gentle, nothing like a gym workout, and the person reported a big improvement in how they felt, though it did not fix everything overnight.

Ask Miruvor AI

Asking aboutPuffin 22966’s story

What they tried

Their words about each treatment
  • Vestibular Therapy · HelpedHonestly, it works well. The exercises were really gentle—nothing like regular gym workouts. It didn’t fix everything overnight, but I noticed a big improvement in how I felt. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—months of dizziness and off-balanceMy journey with Vestibular Therapy started after months of feeling like I was dizzy and off-balance. In context ↗
2024-05-30gentle vestibular therapy exercises brought a big improvementIt didn’t fix everything overnight, but I noticed a big improvement in how I felt. In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiafeeling like I was dizzy and off-balance In context ↗

Ask Miruvor AI

Asking aboutPuffin 22966’s story

Similar stories

  • Housebound with ME/CFS and brain fog, now much better with pacing and antihistamines

    Much better Lagoon 80616 ME/CFS Moderate at worstIll 6.5 years before improving or writing reddit.com Oct 2026

    Ill from March 2020, they were housebound with POTS, brain fog and PEM early on, and in May 2023 said treatments had taken them from about 30% to 70% of normal. Blood thinners, guanfacine, antihistamines, continuous progesterone, pacing and other medications…

  • Homebound with long COVID, now nearly back to normal after ketotifen and amitriptyline

    Near normal Grove 70620 Long COVID Severe at worstIll 2 years before improving or writing reddit.com Oct 2026

    They fell ill with long COVID in December 2023, with head pressure, brain fog, tinnitus, dizziness, anxiety and DPDR, and were homebound and off work from June 2024. Ketotifen from a Mayo clinic in April 2025 took them from about 5% to 70%, and…

  • Not enough detail to draw a path

    Bedbound with ME/CFS, somewhat better after valacyclovir and IV antibiotics

    Somewhat better Ridge 79841 ME/CFS Severe at worstIll 4.5 years before improving or writing reddit.com Oct 2026

    A UK person who fell ill with long COVID in March 2022 became severe, bedbound in a dark room for about 18 months and is still mostly non-verbal. Valacyclovir for reactivated EBV/VZV ended their light sensitivity, and IV antibiotics for reactivated Lyme…

  • Long COVID with severe exhaustion and brain fog, somewhat better on LDN and nerve blocks

    Somewhat better Lake 77381 Long COVID Moderate at worst reddit.com Oct 2026

    They have long COVID after a COVID infection, with severe exhaustion and brain fog, insomnia, headaches, a years-long cough, fibromyalgia and MCAS. Speech therapy, CBT-I sleep restriction, LDN, propranolol, magnesium and occipital nerve blocks each helped…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime