ME/CFS, still symptomatic and somewhat better with SCIG
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Now: Somewhat better
I’ve had some luck on SCIG (sub Q IVIG) however I’m still symptomatic
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Puffin 56142 has myasthenia gravis with a MuSK antibody and reports still being symptomatic despite some luck with subcutaneous immunoglobulin (SCIG). They say Mestinon and IVIG are supposedly not very helpful for their antibody subtype, and they planned to start a Mestinon trial the next day.
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What they tried
What they credit
Also tried
Their words about each treatment
- SCIG (sub Q IVIG) · Helped
I've had some luck on SCIG (sub Q IVIG) however I'm still symptomatic.
In context ↗ - Mestinon · Not said
I'm going to do a trial of Mestinon starting tomorrow
In context ↗
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