Long COVID
Mild → no benefitIll for 4 years
Long COVID with POTS and cognitive PEM, no improvement from exercise or brain retraining
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 4 years
- Last post
- May 2026
In their words
- Condition: Long COVID
I got cold hands/feet even before getting long covid, but it's worse now post-covid.
In context ↗ - At worst: Mild
Even the slowest jogging at 100 meters gives me 180+ pulse with heart beating very fast.
In context ↗ - Now: No benefit
0 results, 0 symptoms improved
In context ↗ - Began after: COVID
I got cold hands/feet even before getting long covid, but it's worse now post-covid.
In context ↗
Read from 14 of their posts and comments; links to the 12 this page draws on
Summary
Long COVID for about four years, with POTS, insomnia and cognitive PEM that mental effort worsens. Daily exercise, months of brain retraining, JournalSpeak journalling and nervous-system exercises gave no symptom improvement; they spent over $5,000 on supplements and courses. Propranolol 10 mg before sleep helped, and yoga nidra warmed cold feet for hours. POTS was still uncured as of their November 2025 post.
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What they tried
Also tried
Their words about each treatment
- daily exercise / light jogging · No change
Despite doing daily exercise and brain retraining for months, it made 0 change in my symptoms.
In context ↗ - brain retraining / nervous system stuff / bootleg course · No change
I did nervous system stuff for some time too, 0 results, 0 symptoms improved.
In context ↗ - journalspeak · No change
I did journalspeak for months, no symptom improvement at all
In context ↗ - ear massaging and looking at the side · No change
I tried ear massaging and looking at the side but didn't feel much
In context ↗ - supplements · Not said
spent over 5000$ on supplements and courses
In context ↗ - Propranolol · Helped
Propranolol 10mg right before sleep works for me
In context ↗ - yoga nidra · Helped
What really seems to help is doing yoga nidra, right after that my feet go warm for like 5-6 hours.
In context ↗ - emotional releases / inner child meditations · No change
I have tried some youtube inner child meditations, emotional releases etc but I don't really feel they are effective
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | long COVID onset; POTS and insomniaI got cold hands/feet even before getting long covid, but it's worse now post-covid.In context ↗ | Mild |
| 2026-01-12 | insomnia slightly more stable with nervous-system exercises; no symptom improvementI had insomnia but I'm more stable nowIn context ↗ | Mild |
| 2026-05-02 | still ill; journalling for months did not helpdidn't help me at allIn context ↗ | Mild |
Adverse events
- Meditation, yoga, breathwork“Think too much, mentally do something too much (even just meditating for 20 minutes) and i will sleep like 3 hours that day” In context ↗ Insomnia from treatment
- Meditation, yoga, breathwork“it gives me worse insomnia.(i already have insomnia but this makes it worse)” In context ↗ Insomnia from treatment
Symptoms mentioned
Heart symptoms & palpitationsPOTS & dysautonomiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- POTS & dysautonomia
POTS has been impossible to cure for me.
In context ↗ - Heart symptoms & palpitations
Even the slowest jogging at 100 meters gives me 180+ pulse with heart beating very fast.
In context ↗ - Sleep problems
Cognitive PEM gives me insomnia.
In context ↗ - Post-exertional malaise
Think too much, mentally do something too much (even just meditating for 20 minutes) and i will sleep like 3 hours that day
In context ↗ - Temperature regulation
I got cold hands/feet even before getting long covid, but it's worse now post-covid.
In context ↗