Long COVID: 95% better, then a cold brought a relapse; POTS now limits desk sitting
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: Long COVID
LC symptoms that were very similar to the head cold started to very slowly manifest
In context ↗ - At worst: Moderate
I bought a laptop desk for my bed because I can’t sit at my desk for more than a few minutes due to POTS.
In context ↗ - Now: Relapsed
I was 95% better for a year and a half. ... In the past two months I’ve lost all of that.
In context ↗ - Began after: COVID
LC symptoms that were very similar to the head cold started to very slowly manifest
In context ↗
Summary
Grove 96661 had long COVID and was 95% better for about a year and a half before a head cold in mid-2024 set off a relapse. After ten days of cold symptoms they felt better, did jiu jitsu and a hike, and crashed hard; symptoms kept returning and worsening over the next month. By August 2024 they could not sit at their desk more than a few minutes because of POTS, and had lost their relationship and a large client.
Ask Miruvor AI
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | long COVID, severity at onset not describedI was 95% better for a year and a half.In context ↗ | Not stated |
| until mid-2024 | 95% better for a year and a half, back to relationships, work and backpacking plansI was 95% better for a year and a half. Was in a relationship with my absolute dream girl, about to tackle my biggest career endeavor.In context ↗ | Near normal |
| June 2024 | head cold, then crashed after jiu jitsu and a hikeI crashed super hard after the hike.In context ↗ | Not stated |
| 2024-08-19 | relapse over two months: cannot sit at their desk, lost partner and client, working from a bed deskI bought a laptop desk for my bed because I can’t sit at my desk for more than a few minutes due to POTS.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
because I can’t sit at my desk for more than a few minutes due to POTS
In context ↗ - Post-exertional malaise
I pushed myself too hard the day after I started feeling better. Jiu Jitsu in the morning, then an afternoon hike. I crashed super hard after the hike.
In context ↗ - Flu-like symptoms
LC symptoms that were very similar to the head cold started to very slowly manifest
In context ↗