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Long COVID Moderate → relapsed

Long COVID: 95% better, then a cold brought a relapse; POTS now limits desk sitting

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Aug 2024
In their words
  • Condition: Long COVIDLC symptoms that were very similar to the head cold started to very slowly manifest In context ↗
  • At worst: ModerateI bought a laptop desk for my bed because I can’t sit at my desk for more than a few minutes due to POTS. In context ↗
  • Now: RelapsedI was 95% better for a year and a half. ... In the past two months I’ve lost all of that. In context ↗
  • Began after: COVIDLC symptoms that were very similar to the head cold started to very slowly manifest In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Grove 96661 had long COVID and was 95% better for about a year and a half before a head cold in mid-2024 set off a relapse. After ten days of cold symptoms they felt better, did jiu jitsu and a hike, and crashed hard; symptoms kept returning and worsening over the next month. By August 2024 they could not sit at their desk more than a few minutes because of POTS, and had lost their relationship and a large client.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—long COVID, severity at onset not describedI was 95% better for a year and a half. In context ↗Not stated
until mid-202495% better for a year and a half, back to relationships, work and backpacking plansI was 95% better for a year and a half. Was in a relationship with my absolute dream girl, about to tackle my biggest career endeavor. In context ↗Near normal
June 2024head cold, then crashed after jiu jitsu and a hikeI crashed super hard after the hike. In context ↗Not stated
2024-08-19relapse over two months: cannot sit at their desk, lost partner and client, working from a bed deskI bought a laptop desk for my bed because I can’t sit at my desk for more than a few minutes due to POTS. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiabecause I can’t sit at my desk for more than a few minutes due to POTS In context ↗
  • Post-exertional malaiseI pushed myself too hard the day after I started feeling better. Jiu Jitsu in the morning, then an afternoon hike. I crashed super hard after the hike. In context ↗
  • Flu-like symptomsLC symptoms that were very similar to the head cold started to very slowly manifest In context ↗

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