ME/CFS
Severe → no benefit
In bed all day with ME/CFS; work and exercise made them weaker, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2023
In their words
- At worst: Severe
As if lying in bed all day is far better than having a meaningful life.
In context ↗ - Now: No benefit
I tried working and exercising but just got weaker and weaker and not fitter as you usually do.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Cedar 59427 described others saying it was just an excuse so they did not have to work or exercise. They said they had tried working and exercising but got weaker and weaker rather than fitter. They referenced lying in bed all day instead of having a meaningful life. Their post did not mention a diagnosis, blood tests, doctors, benefits, treatment or improvement.
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What they tried
Also tried
Their words about each treatment
- exercising · Worse
I tried working and exercising but just got weaker and weaker and not fitter as you usually do
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023 | weaker and weaker after trying to work and exerciseDespite the fact I tried working and exercising but just got weaker and weaker and not fitter as you usually do.In context ↗ | Severe |
| 2023-04-04 | still undiagnosed, in bed all day, disability for autismAs if lying in bed all day is far better than having a meaningful life.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I tried working and exercising but just got weaker and weaker and not fitter as you usually do.
In context ↗ - Muscle weakness
but just got weaker and weaker and not fitter
In context ↗