Long COVID with POTS, running again, then POTS returned after a second infection
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4.5 years
- Last post
- Jun 2025
In their words
- Condition: Long COVID
I have been struggling with long covid for 4 years.
In context ↗ - At worst: Mild
I still can't run. I cycle, I walk. I often have pem.
In context ↗ - Now: Relapsed
1 year later I was able to run again. I caught it again in 2022. I've been trying ever since. Not with much success.
In context ↗ - Began after: COVID
It started in 2020 oct. I went run 1 month after covid.
Read from 13 of their posts and comments; links to the 12 this page draws on
Summary
Beacon 21232 developed long COVID in October 2020 and ran again a month later, after which heart rate reached 170 and POTS began. About a year later they could run again, but a second infection in 2022 brought POTS back and they have not run since, though they cycle, walk and often have PEM. They take metoprolol; antihistamines helped for two weeks; Brintellix helped for anxiety, insomnia, tiredness and POTS but stopped helping much after roughly two years.
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What they tried
What they credit
Also tried
Their words about each treatment
- allegra · Helped
I was fine for 2 weeks on allegra and famotidine.
In context ↗ - Metamizol - sodium · Helped
Metamizol - sodium improves my hrv day by day.
In context ↗ - metoprolol · Not said
I use metoprolol. Max 10mg/day.
In context ↗ - L-arginine · Worse
L-arginine raises my pulse.
In context ↗ - running, cycling, walking · Not said
I started running again 1 year after my first covid. After 2 years after the second one I still can't run.
In context ↗ - Nattokinase · No change
Nattokinase does not help.
In context ↗ - Brintellix · Helped
Brintellix is fine for me. It helps a lot for anxiety. ... But after approx 2 years, it doesnt help that much anymore.
- paracetamol or other nsaid · Helped
For me, taking paracetamol or other nsaid before bed significantly improves it.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Other antidepressants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 Oct | COVID-19 infectionIt started in 2020 oct.In context ↗ | Not stated |
| 2020 Nov | ran a month after COVID; heart rate hit 170 and POTS started1 month after my first covid i vent run. My hr was 170 . Pots started.In context ↗ | Mild |
| 2021 Oct | able to run againI was able to run again 1 year after the first one.In context ↗ | Near normal |
| 2022 | second COVID infection; POTS returned and running stoppedI caught it again in 2022. I've been trying ever since.In context ↗ | Mild |
| 2025-06-25 | still has POTS; cycles and walks, often PEMFrom my second infection in 2022, Pots started again,and im still in.In context ↗ | Mild |
Adverse events
- Nitric-oxide boosters (beetroot, arginine, citrulline)“L-arginine raises my pulse. It has a vasodilating effect.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
From my second infection in 2022, Pots started again,and im still in.
In context ↗ - Post-exertional malaise
I often have pem.
In context ↗ - Heart symptoms & palpitations
Sometimes my hr is 120 when the weather is hot.
In context ↗ - Anxiety & low mood
Brintellix is fine for me. It helps a lot for anxiety.
In context ↗ - Sleep problems
Brintellix help for insomnia,tiredness,pots.
In context ↗
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